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Quality-of-life issues in the treatment of testicular cancer.

Quality of life (QOL) issues in testis cancer have recently assumed great importance for both physicians and patients. Since most of the patients are going to be long-term survivors, with modern therapeutic approaches, psychosocial difficulties and sexual life problems may become one of the major long-term complications of testis cancer treatment. QOL studies available demonstrate that approximately 10% of the patients will suffer from enduring long-term psychological problems, namely anxiety, depression, fatigue, and disrupted intimate relationships. Since these problems develop unrelated to …

Quality of life in adult recipients of bone marrow transplantation.

Quality of life, coping styles, and satisfaction with health care were assessed in 32 bone marrow transplant recipients and 22 conventional chemotherapy recipients. Subjects reported having generally good quality of life with no significant differences in quality of life or coping styles between the two groups. Quality of life was not significantly associated with age, socioeconomic status, time since diagnosis, or time since last treatment, although lower scores were associated with a passive coping style. Interestingly, bone marrow transplant recipients reported greater over-all satisfaction…

Quality of Life and Related Factors in Children With Dystonia.

BACKGROUND: Dystonia is characterized by continuous involuntary contractions of agonist and antagonist muscles, adversely affecting functionality. It is among the most prevalent forms of movement disorders observed during childhood. We aimed to measure dystonia severity, motor functions, sleep quality, constipation, and functional independence in children with dystonia, and to examine the relationships between these parameters and quality of life in this exploratory study. METHODS: Children's dystonia severity, motor function, sleep disorders, constipation, independence in daily activities, a…

A Study of the Quality of Life in Patients on Hemodialysis Therapy.

AIM: To study and compare demographic data, medical parameters, and quality of life (QoL) using the World Health Organization Quality of Life-BREF (WHOQOL-BREF) tool among hemodialysis (HD) patients at Father Muller Medical College Hospital (FMMCH), Mangalore.  Methods: This cross-sectional study was conducted over a period of six months among 100 adult patients with end-stage kidney disease (ESKD) undergoing maintenance HD at FMMCH. Data were collected using a structured questionnaire comprising demographic information, clinical parameters, and the WHOQOL-BREF instrument to assess four domain…

Quality of life assessment for patients with cancer in Bangladesh.

BACKGROUND: Cancer is a global health concern with significant implications for a patient's wellbeing. Maintaining a good quality of life (QOL) is a substantial challenge for patients with cancer. The aim of this study was to assess the quality of life and psychological problems of patients with cancer at the National Institute of Cancer Research and Hospital in Bangladesh. METHODS: This cross-sectional study was carried out from December 2021 to February 2022. A total of 354 patients with cancer were interviewed via the following convenience sampling technique. Data were collected via a face…

Clinical Features and Quality of Life in Patients with Scabies.

OBJECTIVE: Scabies is a contagious cutaneous infestation characterized by intense itching. In this study, we aimed to evaluate the clinical features of scabies and the effect of scabies on quality of life, and the change in quality of life with treatment. METHODS: This prospective and cross-sectional study included 40 adults patients with classical scabies. Detailed skin examinations of the patients were performed. Dermatological life quality index (DLQI) was used to evaluate quality of life in patients with scabies. Visual analog scale (VAS) was used to investigate the severity of nocturnal …

Quality of life in patients with acromegaly: a scoping review.

PURPOSE: To evaluate the available evidence regarding the quality of life (QoL) in patients with acromegaly, by synthesizing the psychosocial factors of QoL, QoL measures, and complementary interventions targeting QoL. METHODS: A scoping review was conducted using the PRISMA-ScR guideline. We searched six English databases (PubMed, Embase, CINAHL, Scopus, Web of Science, and the Cochrane Library) from the inception to August 21, 2023. We included observational studies involving psychosocial factors and complementary interventions targeting QoL (concept) in patients with acromegaly (population…

[Effect of keratoplasty on the quality of life of keratoconus patients].

Corneal deformations caused by keratoconus produce high levels of optical aberration (OA). Despite appropriate optical correction, these alter the quality of vision and diminish the patient's quality of life, especially since the affected population is predominantly young and of working age. When thinning is too severe or corneal transparency too impaired, a corneal transplant may be considered. In this study, we compare the quality of life of patients with keratoconus in the early (stages 1 and 2) or advanced (stages 3 and 4) stages of the Krumeich classification, as well as patients who have…

Quality of life and the patient journey in hidradenitis suppurativa.

Hidradenitis suppurativa is a debilitating inflammatory disease with a profound impact on quality of life for affected patients and caregivers. The patient journey in hidradenitis begins with symptom onset and proceeds through diagnosis and treatment. It is fraught with misdiagnosis, lack of awareness, misinformation, and inappropriate treatments that lead to shame, blame, isolation, and medical mistrust. This review highlights the relationship between hidradenitis and quality of life, emphasizing the patient journey and opportunities to improve care along its tortuous course.

[Studers operation is a fight for the quality of life of the patient].

The article presents a clinical observation demonstrating the functional results of orthotopic bladder plastic surgery according to Studer after radical cystectomy, which demonstrates the progression of chronic kidney disease (CKD) 2.5 years after surgery. According to the literature, patients who survived the early postoperative period with muscle-invasive bladder cancer and no lymph node involvement have a high probability of relapse-free and cancer-specific life expectancy of more than 15 years, but the probability of developing severe renal failure reaches 20%, which reduces the quality an

The prevalence of incontinence and its impact on quality of life.

The study set out to find out how common urine incontinence was in the community and how it affected people's quality of life and other relevant characteristics. Patients who applied to Family Medicine Outpatient Clinics were asked to complete a questionnaire as part of the study. Participants who consented to participate in the study were given access to a questionnaire that included the Incontinence Quality of Life Scale (I-QOL), the International Consultation on Incontinence Questionnaire Short Form (ICIQ-SF), and the Three Incontinence Questions (3IS) form. There were 18.5% of male partici…

EFFECT OF VORTIOXETINE ON THE QUALITY OF LIFE IN PATIENTS WITH SCHIZOPHRENIA.

Quality of life is a multidimensional concept that includes both positive and negative aspects of well-being and life, as well as social, psychological and physical health. It is related to health and refers to the optimal level of mental, physical and social functioning.The aim of the research was to examine the effects of vortioxetine on the quality of life in patients with schizophrenia. Overall 120 stable patients with schizophrenia were randomly divided into two groups (treatment and control). All subjects were on antipsychotic therapy (olanzapine or risperidone or aripiprazole). Vortioxe…

Quality of Life in Patients with Phenylketonuria: A Systematic Review.

The impact of phenylketonuria (PKU) on Quality of life (QoL) has been a topic of interest in recent research. This article reviews current researches on the impact of PKU on QoL. The review examines factors that may influence QoL, such as age, metabolic control, and treatment adherence. In this systematic review study, relevant articles were identified using a search strategy built with the keywords phenylketonuria, PKU, or hyperphenylalaninemia (or their synonyms) and QoL in Web of Science, Scopus, and PubMed databases. After identifying the articles, duplicates, reviews, scientific abstracts…

Качество жизни людей с множественным склерозом в Португалии.

ВВЕДЕНИЕ: Множественный склероз существенно влияет на качество жизни тех, кто страдает от этого конкретного состояния. ЦЕЛЬ: Оценка качества жизни людей с множественным склерозом и анализ взаимосвязи между болезнью и связанными с ней последствиями и различными социально-демографическими, клиническими и функциональными переменными. МАТЕРИАЛЫ И МЕТОДЫ: Наблюдение, перекрестное, описательное и количественное исследование, проведенное с использованием непробивной удобной выборки, состоящей из 70 пациентов, страдающих множественным склерозом, зарегистрированных Ассоциацией по множественному склероз

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INTRODUCTION: Multiple sclerosis significantly affects the quality of life of those suffering from this specific condition. OBJECTIVE: To assess the quality of life of people with multiple sclerosis and analyse the correlation between the disease and its associated effects and different sociodemographic, clinical, and functional variables. MATERIALS AND ME…

Quality of life and tomography indices in patients with keratoconus.

OBJECTIVE: Keratoconus is a corneal ectasia that leads to thinning and steepening of the corneal surface. We aimed to assess the relationship between quality of life and corneal tomography indices, irrespective of visual acuity. METHODS: This was a cross-sectional study using a translated and validated Keratoconus Outcomes Research Questionnaire (KORQ) in Arabic language. We screened patients with keratoconus using the Belin/Ambrósio D-Index. We included the best-seeing eye in each patient with keratoconus, with a best corrected visual acuity better than 0.5. We collected variables including …

Quality of Life and Pain in Patients With Chronic Pancreatitis.

INTRODUCTION: The quality of life (QoL) of patients with chronic conditions is a function of factors associated with the illness, its natural course, and treatment as well as those related to the patient. Chronic pancreatitis (CP) is a critical public health problem. Chronic pancreatitis patients can experience chronic pain with different mechanisms, malabsorption, diabetes, and cachexia. OBJECTIVE: Chronic pancreatitis (CP) is a critical public health problem. CP patients can experience chronic pain with different mechanisms, malabsorption, diabetes, and cachexia. The aim of the study was to…

The Assessment of the Quality of Life in Patients with Rheumatoid Foot.

BACKGROUND: The negative effects of rheumatoid arthritis (RA) are multi-dimensional. Foot deformities lead to disability, pain, and impaired quality of life. OBJECTIVE: Identifying the difficulties in functioning rheumatoid foot and assessing the quality of life in this aspect. MATERIALS AND METHODS: The material included 50 patients of Rheumatology Policlinic of the Central Clinical Hospital of Interior Affairs in Warsaw and a matched control group of 50 individuals without RA. The degree of foot joint damage was assessed using the Manchester scale, lower limb movement and quality of life u…

Impulsivity and reduced quality of life in persons with paraplegia.

BACKGROUND: Low Quality of Life (QoL) in persons with paraplegia may stem from impulsive behaviors. Impulsivity in persons with paraplegia and persistently low QoL has seldom been probed but could be targeted with cognitive behavioral therapies. OBJECTIVE: Determine how task-assessed and self-report impulsivity relate to quality of life (QoL) in adults with paraplegia. METHODS: In a preliminary study, 33 adults with paraplegia after traumatic SCI were administered verbal interviews on QoL from the PROMIS item bank at baseline and at six-month follow-up, along with several computerized metric…

What is the quality of life of adults with vitiligo in Mexico?

INTRODUCTION: Vitiligo is an incurable, slowly progressive skin condition, the prevalence of which ranges from 0.4 to 2.0%. Health-related quality of life (HRQoL) refers to self-perceived well-being associated with the presence of a disease and its treatment. METHODS: Cross-sectional study at a dermatological center. Adults with non-segmental vitiligo (NSV) were included, while patients with other pigmentary disorders and other types of vitiligo were excluded. The VitiQoL questionnaire (0 = no skin involvement, 90 = maximum skin involvement), the Vitiligo Extent Score (VES) and the Vitiligo A…