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Invisible Pillars With Hidden Burdens: A Scoping Review on the Challenges of Informal Caregivers for Older Adults in Home-Based Palliative Care.

Objective: This study aimed to show evidence from existing literature about the experiences and challenges managed by informal caregivers of older adults in home-based palliative care. Methods: A scoping review was conducted using Arksey and O'Malley's framework. Eight electronic databases, Academic Search Complete, AgeLine, APAPsycArticles, Cumulative Index to Nursing and Allied Health Literature (CINAHL) Complete, Global Health, Medline, PsycINFO, Social Work Abstracts, and Web of Science from the EBSCO platform were searched. After full text review, data were extracted and charted. Major th

Множественная миелома у людей трудоспособного возраста в Германии, Польше и Чехии: результаты качественного исследования.

ЦЕЛЬ: Цель исследования состояла в том, чтобы понять опыт взрослых трудоспособного возраста с миеломой и их партнерами/членами семьи, проживающими в Германии, Чешской Республике и Польше. МЕТОДЫ: КОНСУЛЬТАТИВНЫЕ СООБРАЖЕНИЯ 36 взрослых трудоспособного возраста, живущих с миеломой, и three Члены семьи. Данные были собраны в период с мая по октябрь 2022. К данным был применен тематический анализ. Результаты: Описано медицинское обслуживание и государственная поддержка в каждой стране. Степень участия в трудовой деятельности зависит от бремени симптомов пациентов, потребностей в лечении, государс

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… State financial support People described their understanding of, and access to, financial support from the state, for working-age people with a serious illness. Some were not aware of their rights for state support and indicated that they received lower levels of assistance that was available. … Funding Financial support was provided by the Myeloma Patients Europe, who received funding for this project from Pfizer Inc. …

Artificial Reproductive Technology Use and Family-Building Experiences of Female Adult Childhood Cancer Survivors: A Qualitative Study.

PURPOSE: Cancer treatments can result in subfertility or infertility in female adult childhood cancer survivors (ACCSs). While ACCSs may uti … MPLICATIONS FOR CANCER SURVIVORS: The integration of comprehensive informational, psychosocial, and financial supports into existing cancer survivor and family-building services is vital to meeting female ACCSs' unmet needs.

Pharmacists' role in diabetes management for persons with lived experience of homelessness in Canada: A qualitative study.

INTRODUCTION: Persons with lived experience of homelessness face many challenges in managing diabetes, including purchasing and storing medications, procuring healthy food and accessing healthcare services. Prior studies have found that pharmacy-led interventions for diabetes improved A1C, and lowered blood pressure and cholesterol in general populations. This study evaluated how select pharmacists in Canada have tailored their practices to serve persons with lived experiences of homelessness with diabetes. METHODS: We conducted a qualitative descriptive study using open-ended interviews with

Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.

OBJECTIVES: Spinal muscular atrophy (SMA) has profound implications for patients and families. The aim of the present study was to gain insights into the effects caring for a child with SMA has on the costs incurred by families caring for a child with SMA from carer perspectives to identify gaps in provision of care, inform public policy and cost-effectiveness analyses. DESIGN: Interpretive phenomenological analysis guided the delivery and analysis of semi-structured interviews undertaken to explore the financial, opportunity and psychosocial costs associated with caring for children with SMA

Health workforce planning models for older adults in the WHO Eastern Mediterranean Region: a mixed methods systematic review.

BACKGROUND/OBJECTIVE: As the population across the World Health Organization Eastern Mediterranean Region (EMR) ages, healthcare systems are increasingly strained by the rising burden of non-communicable diseases and the growing demand for chronic geriatric care. Effective health workforce planning is essential to address these evolving needs. However, limited evidence exists on the applicability of workforce planning models tailored specifically to older adults in the EMR. The purpose of this review is to examine current models and strategies in health workforce planning for older adult care

Ghana's Diagnosis Related Grouping (G-DRG) tariffs versus hospital charges: implications for inpatient care financing at a secondary hospital in Ghana.

BACKGROUND: Ghana introduced the National Health Insurance Scheme (NHIS) in 2003 as a means of achieving Universal Health Coverage. The Ghana-Diagnosis Related Groupings (G-DRG) is one of the payment mechanisms used to reimburse providers for services and procedures. However, evidence suggests that the amount reimbursed for services through the G-DRG tariffs may be lower than the market prices for same, creating a financial gap that concerns providers. OBJECTIVE: The study assessed the financial implications of the G-DRG payment system on service delivery for inpatient services between 2018 a

Implications of pre-diagnosis costs incurred by patients and their families for tuberculosis-related health-seeking behaviors in Mbeya and Songwe regions, Tanzania.

BACKGROUND: Pulmonary tuberculosis (PTB), remains one of the leading causes of death from infectious diseases worldwide, its burden is disproportionately affecting low- and middle-income countries (LMICs), including Tanzania. This study aimed to examine the direct and indirect costs incurred by patients and their families prior to PTB diagnosis, and how such costs influence patients' health-seeking behaviours. METHODS: A mixed-methods approach was employed, integrating qualitative and quantitative methods for data collection, analysis, and interpretation. The study was part of a longitudinal

Economic sustainability of a comprehensive care health service delivery model for medicaid eligible children with chronic conditions.

Healthcare programs often begin with funds from federal grants that carry with them the expectation that successful programs will become eco … with descriptions of successes and failures, may help other healthcare programs in their quest for financial support.

Strained patient-provider relationship, unmotivated workforce, financial constraints, and stigma: Multiple challenges in integrating mental health care within Vietnam's methadone clinics.

This study examined current mental health practices in methadone treatment in Vietnam. We conducted 23 interviews with participants with methadone experiences (n = 12), methadone physicians (n = 6), counselors (n = 5), and one focus group with family members. Mental health issues were primarily identified through casual observation, on-site support was limited, and referrals to psychiatric care were rarely pursued. Four factors shaped this situation: (1) a strained patient-provider relationship; (2) an inadequately trained, unstable, unmotivated workforce; (3) participants' financial constrain

COVID-19 and Corporate Finance

We distill evidence about the effects of COVID-19 on companies. Stock price reactions to the shock differed greatly across firms, depending on their resilience to social distancing, financial flexibility, and corporate culture. The same characteristics affected the response of firms' sales, employment, and asset growth. Despite the shock, firms expanded their balance sheets and liquidity by raising funds from banks, bonds, and equity markets. While listed firms reduced their leverage, unlisted ones, especially small and medium enterprises, increased it. Government support programs helped firms

Developing a voluntary initiative for homeless populations in general dental practice.

The number of people experiencing homelessness is increasing in the UK and their access to general dental services is particularly challenging. This is often due to the numerous barriers that homeless populations face in accessing dental services. In this article, we provide information about a voluntary dental initiative that was set up in 2020 to cater to the needs of homeless populations. We give details of how this initiative started, reasons for attendance and services provided, collaborations, financial considerations and ways in which additional support is provided to patients. We end t

Dopamine dysregulation syndrome induced by proxy.

Dopamine dysregulation syndrome is a rare complication of Parkinson's disease (PD) treatment. We present a 70-year-old woman with a long-standing PD and a clinical picture compatible with dopaminergic dysregulation, which was ultimately revealed to be induced by her companion. Patient's exuberant choreiform dyskinesia led to a potential financial advantage when performed outside the hospital but excessive dopamine intake also occurred during hospital admission, without any obvious reward for the abuser. Even in cases where there is no place for a definitive diagnosis, deceptive behaviours must

Addressing the health needs of adolescents transitioning out of foster care.

Adolescents in foster care experience complex health care needs and face multiple barriers in receiving the necessary and appropriate health care services. When the adolescent ages-out of foster care at 18 or 21 years-old they are expected to make a transition to independence with no financial resources, poor access to health care, few personal and family connections and little if any support from the foster care system. This places them at risk for poor physical and mental health status, poverty, unemployment, homelessness, and incarceration. No formalized system of transition planning has ye

[Telephone hotlines as a part of complex services for tobacco dependence treatment].

Telephone quitlines for smoking cessation should be included into the available tobacco dependence treatment and should be included into smo … lling - should be reserved for those really willing to stop. Quitlines should be given governmental financial support (compared to other medical interventions, any smoking cessation treatment is economically more cost effective).

The ethical arguments concerning the artificial ventilation of patients with motor neurone disease.

This paper focuses on the ethical dilemmas created by advanced technology that would allow patients with motor neurone disease to be sustained by artificial ventilation. The author attempts to support the patient's right to informed choice, arguing from the perspective of autonomy as a first order principle. The counter arguments of caregiver burden and financial restraints are analysed. In the UK, where active euthanasia is not legalized, the dilemma of commencing ventilation is seen to be outweighed by the problems of withdrawing this treatment. The lack of accurate data and protocols that w

Exploring the lived experiences of individuals living with Charcot neuro-osteoarthropathy in Australia: A qualitative research study.

AIM: Charcot neuro-osteoarthropathy (CNO) is a rare but serious inflammatory process in individuals with peripheral polyneuropathy leading to the development of fractures, dislocations and permanent foot deformity. Most commonly, CNO occurs in individuals with diabetes and the progression of significant foot deformity can predispose the individual to pressure-related ulcerations and increased risk of lower limb amputation. The lived experience of the individual with CNO is largely unknown. This study aims to explore the lived experience of individuals affected by active CNO and CNO in remissio

The everyday life situation of caregivers to family members who have had a stroke and received the rehabilitation intervention F@ce in Uganda.

BACKGROUND: Stroke is increasing in Africa and consequences such as limitations in the performance of activities in everyday life persist a long time. A family member might need to care for and assist the person who has had a stroke. The life situation of these caregivers thereby changes, which could lead to increased workload and new responsibilities in caring for which they lack but request knowledge. During the F@ce rehabilitation program, the caregivers received counseling, which is uncommon in the African context. The aim of the study was twofold; (1) to investigate the perceived caregive

Advancing Particle Therapy to Improve Cancer Care: Report on "2nd World Forum on Particle Therapy".

PURPOSE: Charged particle therapy (PT), including proton beam therapy (PBT) and carbon ion radiation therapy (CIRT), offers potential advant … and no cognitive benefit seen in adult glioblastoma. Additional trials results are awaited. Vendor financial support has been instrumental in enabling many studies.CIRT trials remain limited, though several are ongoing. Further development and harmonization of relative biological effectiveness (RBE) models is crucial. Helium therapy and oxygen therapy require expl …

Older Americans' Attitudes Toward Caregiving Cost Responsibility and Long-Term Care Access and Costs by Caregiver Status.

BACKGROUND: Rising numbers of older adults will intensify demand for unpaid care from family and friends (caregiving) and quality paid home, … olicymakers should consider more options for access to affordable, high-quality long-term care, and financial supports for caregivers.