Pediatric surgery international · 2025
Integrating psychological support in the care of children and adolescents with anorectal malformation or Hirschsprung disease: a ten-year experience.
СтатьяНаблюдательное исследованиеНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Bevilacqua Francesca, Iacusso Chiara, Aite Lucia, Valfrè Laura, D'Astore Mariamichela, Dotta Andrea, Vicari Stefano, Braguglia Annabella, Menghini Deny, Conforti Andrea, Fusaro Fabio, Iacobelli Barbara D
Аннотация
PURPOSE: Anorectal malformations (ARM) and Hirschsprung disease (HD) pose challenges not only in diagnosis and treatment but also in the psychological well-being of patients and their families. This study aims to report our single-center experience with psychological follow-up in these populations.
METHODS: We conducted an observational, retrospective study by reviewing the clinical records of patients enrolled in our dedicated follow-up program who were born between 2009 and 2018. Neurodevelopmental assessments were performed during the first year of life, and psychological evaluations were conducted during childhood (ages 6-10) and adolescence (ages 13-18).
RESULTS: The study included 167 patients (101 with ARM, 66 with HD). A total of 120 patients underwent neurodevelopmental assessment at a median age of 11 months, yielding the following results (mean ± SD): cognitive: 105.4 ± 10.8; motor: 96.3 ± 9.5; language: 97.3 ± 9.2. Psychological follow-up was conducted in 139 children and 26 adolescents, with 35.3% of children and 38.5% of adolescents exhibiting psychopathological symptoms primarily of anxiety, depression, and attention deficit/hyperactivity disorder.
CONCLUSIONS: Although early neurodevelopmental outcomes are generally within typical limits, a significant proportion of children and adolescents with ARM and HD demonstrate psychological vulnerabilities. These findings underscore the importance of early identification and continued psychological support throughout development.
METHODS: We conducted an observational, retrospective study by reviewing the clinical records of patients enrolled in our dedicated follow-up program who were born between 2009 and 2018. Neurodevelopmental assessments were performed during the first year of life, and psychological evaluations were conducted during childhood (ages 6-10) and adolescence (ages 13-18).
RESULTS: The study included 167 patients (101 with ARM, 66 with HD). A total of 120 patients underwent neurodevelopmental assessment at a median age of 11 months, yielding the following results (mean ± SD): cognitive: 105.4 ± 10.8; motor: 96.3 ± 9.5; language: 97.3 ± 9.2. Psychological follow-up was conducted in 139 children and 26 adolescents, with 35.3% of children and 38.5% of adolescents exhibiting psychopathological symptoms primarily of anxiety, depression, and attention deficit/hyperactivity disorder.
CONCLUSIONS: Although early neurodevelopmental outcomes are generally within typical limits, a significant proportion of children and adolescents with ARM and HD demonstrate psychological vulnerabilities. These findings underscore the importance of early identification and continued psychological support throughout development.