Family caregiver experiences in terminal cancer: a qualitative study in palliative care.

BACKGROUND

Caring for a family member with advanced cancer is a physically and emotionally demanding experience that can result in severe psychological distress. Understanding the challenges and burdens faced by family caregivers is essential to developing effective support strategies.

OBJECTIVE

This study aimed to explore the caregiving challenges and lived experiences of Iranian family caregivers of patients with advanced cancer.

METHODS

This qualitative study was conducted in Tehran, Iran, between March 2021 and April 2022. Semi-structured interviews were performed with 13 family caregivers, selected through purposive sampling with maximum variation, until data saturation was achieved. Data were analyzed using Graneheim and Lundman’s content analysis. Credibility and trustworthiness were ensured through member checking, peer debriefing, and adherence to Lincoln and Guba’s qualitative rigor criteria (credibility, dependability, confirmability, and transferability).

RESULTS

Participants, mostly women aged 35–75, described profound physical, emotional, and psychological burdens. The overarching theme, “Fence of Caring,” emerged, encompassing four categories: (1) physical and psychological collapse (2), being trapped in caregiving challenges (3), neglected caregiver, and (4) rumination on the death of a loved one.

CONCLUSION

Iranian family caregivers experience multidimensional burdens within a sociocultural context that emphasizes familial responsibility. Recognition of these challenges is critical to designing culturally sensitive interventions that reduce caregiver strain and support preparedness for end-of-life care.