Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals.
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Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Şahin Nihal, Baykal Gülcan Özomay, Açarı Ceyhun, Aydın Pinar Özge Avar, Baba Özge, Bağlan Esra, Bakkaloğlu Sevcan, Bakırcı Sibel, Bilginer Yelda, Bozkaya Burcu Yücel, Çağlayan Şengül, Çakan Mustafa, Çakmak Figen, Coşkuner Taner, Demir Ferhat, Demirkan Fatma Gül, Doğantan Şeyda, Dündar Hatice Adıgüzel, Ersözlü Emine Duygu, Gücenmez Sercan, Gürler Oğuz, İşgüder Rana, Küçük Adem, Kalyoncu Mukaddes, Kılıç Levent, Kılıç Sara Şebnem, Kısaoğlu Hakan, Kısaarslan Ayşenur Paç, Kızıldağ Zehra, Kurtuluş Duygu, Özdel Semanur, Öztürk Kübra, Şenol Pelin, Tanatar Ayşe, Taşkın Sema Nur, Kuru Fatma Tuncer, Türkuçar Serkan, Ulu Kadir, Ünsal Erbil, Yazıcı Ayten, Cefle Ayşe, Yıldırım Deniz Gezgin, Yüksel Selçuk, Kasapçopur Özgür, Özen Seza, Ayaz Nuray Aktay, Sönmez Hafize Emine, Sözeri Betül
Аннотация
METHODS: Three panels and two rounds were held consisting of adolescents and young adults, parents, and clinicians (pediatric or adult rheumatologists). As a result, feedback on acceptance of the key statements of transitional care was obtained using the Delphi method.
RESULTS: Out of 102 contacted, 88 (86.3%) participants responded to the Round 1 survey, which included 48 clinicians, 20 youths, and 20 parents. In Round 2, the number of clinicians dropped to 29, while the number of youths and parents remained constant. Based on expert opinions, 29 statements were selected for the first round. Statements that received ≥ 70% approval in the first round advanced to the next round. Sixteen statements did not achieve ≥ 70% approval. Of the remaining, 12 were reviewed in the second round, while four were excluded.
CONCLUSION: Although consensus has been reached on the basic transitional care issues for JIA patients, several issues still need to be agreed upon. Acceptance and applicability of the final 20-item checklist in clinical practice are critical for advancing JIA transition care in Turkey.