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DOI 10.1038/s41584-020-00565-z

Медицинская библиотека · Nature reviews. Rheumatology · 2021

The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET.

Talarico Rosaria, Aguilera Silvia, Alexander Tobias, Amoura Zahir, Antunes Ana M, Arnaud Laurent, Avcin Tadej, Beretta Lorenzo, Bombardieri Stefano, Burmester Gerd R, Cannizzo Sara, Cavagna Lorenzo, Chaigne Benjamin, Cornet Alain, Costedoat-Chalumeau Nathalie, Doria Andrea, Ferraris Alessandro, Fischer-Betz Rebecca, Fonseca João E, Frank Charissa, Gaglioti Andrea, Galetti Ilaria, Grunert Jürgen, Guimarães Vera, Hachulla Eric, Houssiau Frederic, Iaccarino Luca, Krieg Thomas, Limper Marteen, Malfait Fransiska, Mariette Xavier, Marinello Diana, Martin Thierry, Matthews Lisa, Matucci-Cerinic Marco, Meyer Alain, Montecucco Carlomaurizio, Mouthon Luc, Müller-Ladner Ulf, Rednic Simona, Romão Vasco C, Schneider Matthias, Smith Vanessa, Sulli Alberto, Tamirou Farah, Taruscio Domenica, Taulaigo Anna V, Terol Enrique, Tincani Angela, Ticciati Simone, Turchetti Giuseppe, van Hagen P Martin, van Laar Jacob M, Vieira Ana, de Vries-Bouwstra Jeska K, Cutolo Maurizio, Mosca Marta

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Аннотация

During the COVID-19 pandemic, the need to provide high-level care for a large number of patients with COVID-19 has affected resourcing for, and limited the routine care of, all other conditions. The impact of this health emergency is particularly relevant in the rare connective tissue diseases (rCTDs) communities, as discussed in this Perspective article by the multi-stakeholder European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET). The clinical, organizational and health economic challenges faced by health-care providers, institutions, patients and their families during the SARS-CoV-2 outbreak have demonstrated the importance of ensuring continuity of care in the management of rCTDs, including adequate diagnostics and monitoring protocols, and highlighted the need for a structured emergency strategy. The vulnerability of patients with rCTDs needs to be taken into account when planning future health policies, in preparation for not only the post-COVID era, but also any possible new health emergencies.

Для цитирования: Talarico Rosaria, Aguilera Silvia, Alexander Tobias, Amoura Zahir, Antunes Ana M, Arnaud Laurent, Avcin Tadej, Beretta Lorenzo, Bombardieri Stefano, Burmester Gerd R, Cannizzo Sara, Cavagna Lorenzo, Chaigne Benjamin, Cornet Alain, Costedoat-Chalumeau Nathalie, Doria Andrea, Ferraris Alessandro, Fischer-Betz Rebecca, Fonseca João E, Frank Charissa, Gaglioti Andrea, Galetti Ilaria, Grunert Jürgen, Guimarães Vera, Hachulla Eric, Houssiau Frederic, Iaccarino Luca, Krieg Thomas, Limper Marteen, Malfait Fransiska, Mariette Xavier, Marinello Diana, Martin Thierry, Matthews Lisa, Matucci-Cerinic Marco, Meyer Alain, Montecucco Carlomaurizio, Mouthon Luc, Müller-Ladner Ulf, Rednic Simona, Romão Vasco C, Schneider Matthias, Smith Vanessa, Sulli Alberto, Tamirou Farah, Taruscio Domenica, Taulaigo Anna V, Terol Enrique, Tincani Angela, Ticciati Simone, Turchetti Giuseppe, van Hagen P Martin, van Laar Jacob M, Vieira Ana, de Vries-Bouwstra Jeska K, Cutolo Maurizio, Mosca Marta. The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET.. Nature reviews. Rheumatology. 2021. DOI: 10.1038/s41584-020-00565-z.

Предметные рубрики MeSH

COVID-19ComorbidityConnective Tissue DiseasesDelivery of Health CareHumansPandemicsSARS-CoV-2
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