Rheumatology international · 2018
The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).
СтатьяМногоцентровое исследованиеВалидационное исследованиеНазвание и аннотация: Перевод в очереди
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Quartier Pierre, Hofer Michael, Wouters Carine, Truong Thi Thanh Thao, Duong Ngoc-Phoi, Agbo-Kpati Kokou-Placide, Uettwiller Florence, Melki Isabelle, Mouy Richard, Bader-Meunier Brigitte, Consolaro Alessandro, Bovis Francesca, Ruperto Nicolino, Paediatric Rheumatology International Trials Organisation (PRINTO)
Аннотация
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the French language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations and construct validity (convergent and discriminant validity). A total of 100 JIA patients (23% systemic, 45% oligoarticular, 20% RF negative polyarthritis, 12% other categories) and 122 healthy children, were enrolled at the paediatric rheumatology centre of the Necker Children's Hospital in Paris. Notably, none of the enrolled JIA patients is affected with psoriatic arthritis. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the French version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Предметные рубрики MeSH
AdolescentAge of OnsetArthritis, JuvenileCase-Control StudiesChildChild, PreschoolCultural CharacteristicsDisability EvaluationFemaleFranceHealth StatusHumansMaleParentsPatient Reported Outcome MeasuresPatientsPredictive Value of TestsPrognosisPsychometricsQuality of LifeReproducibility of ResultsRheumatologyTranslating