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DOI 10.1016/j.pec.2008.03.005

Медицинская библиотека · Patient education and counseling · 2008

Self-investigation to explore the impact of juvenile arthritis on adolescent life: a case-study.

Fuchs Coralie E, Sinnema Gerben, van Geelen Stefan M, Hermans Hubert J M, Kuis Wietse

Клинический случайСтатьяПоддержка исследования: вне правительства СШАПеревод в очереди

Аннотация

OBJECTIVE

To gain insight into the personal experience and feelings of an adolescent with a chronic disease.

METHODS

We report on the application of the self-confrontation method (SCM), illustrated by a case-example of an adolescent with juvenile idiopathic arthritis.

RESULTS

Although taken at face value she was not impeded by the arthritis, through self-assessment with the SCM this adolescent acknowledged and addressed the emotional struggle to keep the arthritis secret and to constantly test the physical limits of her body. After the process of self-reflection, the adolescent showed a better integration of her arthritis experiences into her life story.

CONCLUSION

With the SCM the adolescent could explore her own functioning and well-being on a manifest, as well as on an emotional and motivational level.

PRACTICE IMPLICATIONS: In future research, by studying the self-investigations of a group of adolescents with chronic diseases, common risk factors for the development of a stable identity during adolescence might be identified. In clinical care, the SCM promotes self-knowledge, allowing for an intrinsic motivation to deal with the emotional impact of the disease.

Для цитирования: Fuchs Coralie E, Sinnema Gerben, van Geelen Stefan M, Hermans Hubert J M, Kuis Wietse. Self-investigation to explore the impact of juvenile arthritis on adolescent life: a case-study.. Patient education and counseling. 2008. DOI: 10.1016/j.pec.2008.03.005.

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Обработка статьи · этапы, ошибки и управление
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История · было → стало

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