Медицинская библиотека · Seminars in arthritis and rheumatism · 2021

Establishing core domain sets for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO): A report from the OMERACT 2020 special interest group.

Oliver Melissa, Jayatilleke Aruni, Wu Eveline, Nuruzzaman Farzana, Aguiar Cassyanne, Lenert Aleksander, Romano Micol, Simonini Gabriele, Shah Samir, Hollander Matthew, Alsaleem Alhanouf, Fox Emily, Theos Alexander, Ramanan Athimalaipet V, Schnabel Anja, Lapidus Sivia, Tucker Lori, Onel Karen, Ozen Seza, Dedeoglu Fatma, Ferguson Polly J, Shea Beverley, Akikusa Jonathan, Hedrich Christian, Mease Philip, Zhao Yongdong

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Аннотация

OBJECTIVE

A working group was established to develop a core domain set (CDS) for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO) following the OMERACT filter 2.1.

METHODS

A scoping review to identify disease-related manifestations was performed, followed by a special interest group (SIG) session at OMERACT2020 to begin the CNO/SAPHO CDS framework.

RESULTS

Candidate items were identified from the scoping review and most fell under Life Impact and Pathophysiology Manifestation core areas. A SIG agreed on the need to develop a CDS for CNO and SAPHO (100%) and for children and adults (91%).

CONCLUSION

Based on candidate items identified, qualitative research and Delphi surveys will be performed as next steps.

Для цитирования: Oliver Melissa, Jayatilleke Aruni, Wu Eveline, Nuruzzaman Farzana, Aguiar Cassyanne, Lenert Aleksander, Romano Micol, Simonini Gabriele, Shah Samir, Hollander Matthew, Alsaleem Alhanouf, Fox Emily, Theos Alexander, Ramanan Athimalaipet V, Schnabel Anja, Lapidus Sivia, Tucker Lori, Onel Karen, Ozen Seza, Dedeoglu Fatma, Ferguson Polly J, Shea Beverley, Akikusa Jonathan, Hedrich Christian, Mease Philip, Zhao Yongdong. Establishing core domain sets for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO): A report from the OMERACT 2020 special interest group.. Seminars in arthritis and rheumatism. 2021. DOI: 10.1016/j.semarthrit.2021.05.015.

Предметные рубрики MeSH

Acne Vulgaris Acquired Hyperostosis Syndrome Adult Child Humans Hyperostosis Osteitis Osteomyelitis Public Opinion Synovitis

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