Arthritis research & therapy · 2025
Functional work disability from the perspectives of persons with systemic lupus erythematosus: a qualitative thematic analysis.
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Nowrouzi-Kia Behdin, Howe Aaron S, Li Anson, Tan Jeremy, Saade-Cleves Natalia, Jules Kevon, Sadek Malak, Bani-Fatemi Ali, Avina-Zubieta Antonio, Fox Mary T, Shaw William, Haaland Derek, Pope Janet, Fortin Paul R, Bingham Kathleen S, Peschken Christine, Reynolds Jennifer, Ivory Catherine, Gladman Dafna D, Urowitz Murray B, Sanchez-Guerrero Jorge, Lim Lily S H, Keeling Stephanie, Katz Patti, Kavkan Mahta, Bonilla Dennisse, Nielsen Wils, Touma Zahi
Аннотация
BACKGROUND: Systemic lupus erythematosus (SLE) disease symptoms that can significantly restrict work ability and work participation resulting in reduced mental well-being. This study investigates the significant impact of work participation and disability on the mental wellbeing, health-related quality of life, and disease-related outcomes in individuals with SLE.
METHODS: With the objective of creating an SLE-related functional profile rooted in work disability (WD) prevention, 46 SLE patients were purposively recruited from Canadian medical centres. Through semi-structured interviews guided by a WD prevention framework, factors associated with WD and lived experiences of SLE-related WD were qualitatively explored. Braun and Clarke's six-stage inductive thematic analysis was used to organize the data.
RESULTS: Most participants experienced some form of work disability across their employment history related to their clinical manifestations of SLE, including hospitalizations, physical limitations, fatigue, and neurocognitive symptoms (e.g. brain fog). Thematic analysis revealed three key themes: (a) the influence of illness experience on work, (b) the stigmatization of illness disclosure, and (c) the availability of workplace resources/accommodations. Participants emphasized the desirability of work with reduced physical and mental demands, increased personal control, and workplace flexibility to prevent WD.
CONCLUSION: The study underscores the need for a collaborative, multi-component, and multidisciplinary intervention targeting psychosocial and workplace factors to establish a goal-oriented preventative framework, potentially improving WD outcomes in SLE individuals.
METHODS: With the objective of creating an SLE-related functional profile rooted in work disability (WD) prevention, 46 SLE patients were purposively recruited from Canadian medical centres. Through semi-structured interviews guided by a WD prevention framework, factors associated with WD and lived experiences of SLE-related WD were qualitatively explored. Braun and Clarke's six-stage inductive thematic analysis was used to organize the data.
RESULTS: Most participants experienced some form of work disability across their employment history related to their clinical manifestations of SLE, including hospitalizations, physical limitations, fatigue, and neurocognitive symptoms (e.g. brain fog). Thematic analysis revealed three key themes: (a) the influence of illness experience on work, (b) the stigmatization of illness disclosure, and (c) the availability of workplace resources/accommodations. Participants emphasized the desirability of work with reduced physical and mental demands, increased personal control, and workplace flexibility to prevent WD.
CONCLUSION: The study underscores the need for a collaborative, multi-component, and multidisciplinary intervention targeting psychosocial and workplace factors to establish a goal-oriented preventative framework, potentially improving WD outcomes in SLE individuals.