Revista da Escola de Enfermagem da U S P · 2025
Social inclusion of families of children with Zika syndrome in light of Betty Neuman.
СтатьяНазвание и аннотация: Перевод в очереди
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Lima Laís Helena de Souza Soares, Coriolano-Marinus Maria Wanderléya de Lavor, Lima Monique de Freitas Gonçalves, Vasconcelos Eliane Maria Ribeiro de, Pontes Cleide Maria, Linhares Francisca Márcia Pereira
Аннотация
OBJECTIVE: To identify the stressors and reactions related to the knowledge and experiences of families of children with congenital Zika virus syndrome on social inclusion in light of Betty Neuman.
METHOD: Qualitative research, carried out in a hospital institution with nine mothers of children with Congenital Zika Syndrome. The data were collected between November and December 2020, from semi-structured interviews, and analyzed with the help of the IRAMUTEQ software and the manifest content analysis framework.
RESULTS: The analyses revealed three categories: Activities outside the home, highlighting the daily challenges faced outside the home, such as the lack of support in the educational system; Difficulties in adaptation, which highlighted physical and social barriers, such as the inadequacy of public spaces and the lack of social empathy; Knowledge about rights and inclusion, showing the lack of knowledge and uncertainty of families about their rights and social inclusion.
FINAL CONSIDERATIONS: The experiences and knowledge revealed the need for social interaction, adaptation, facing prejudice, seeking validity of rights and leading role in the context of social inclusion of these families.
METHOD: Qualitative research, carried out in a hospital institution with nine mothers of children with Congenital Zika Syndrome. The data were collected between November and December 2020, from semi-structured interviews, and analyzed with the help of the IRAMUTEQ software and the manifest content analysis framework.
RESULTS: The analyses revealed three categories: Activities outside the home, highlighting the daily challenges faced outside the home, such as the lack of support in the educational system; Difficulties in adaptation, which highlighted physical and social barriers, such as the inadequacy of public spaces and the lack of social empathy; Knowledge about rights and inclusion, showing the lack of knowledge and uncertainty of families about their rights and social inclusion.
FINAL CONSIDERATIONS: The experiences and knowledge revealed the need for social interaction, adaptation, facing prejudice, seeking validity of rights and leading role in the context of social inclusion of these families.