Social inclusion of families of children with Zika syndrome in light of Betty Neuman.

OBJECTIVE

To identify the stressors and reactions related to the knowledge and experiences of families of children with congenital Zika virus syndrome on social inclusion in light of Betty Neuman.

METHOD: Qualitative research, carried out in a hospital institution with nine mothers of children with Congenital Zika Syndrome. The data were collected between November and December 2020, from semi-structured interviews, and analyzed with the help of the IRAMUTEQ software and the manifest content analysis framework.

RESULTS

The analyses revealed three categories: Activities outside the home, highlighting the daily challenges faced outside the home, such as the lack of support in the educational system; Difficulties in adaptation, which highlighted physical and social barriers, such as the inadequacy of public spaces and the lack of social empathy; Knowledge about rights and inclusion, showing the lack of knowledge and uncertainty of families about their rights and social inclusion.

FINAL CONSIDERATIONS: The experiences and knowledge revealed the need for social interaction, adaptation, facing prejudice, seeking validity of rights and leading role in the context of social inclusion of these families.