Journal of pediatric urology · 2026
Quality of life, mental health, and resilience in mothers of children with bladder exstrophy: Does family size matter?
СтатьяНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Kamran Hooman, Shamsaee Aghileh, Mofidi Farbod, Manouchehri Mehdi, Haghighat Neda, Foroutan Hamidreza, Alam Alireza
Аннотация
INTRODUCTION: The challenges of raising a child with bladder exstrophy (BE) require parents to be strong and resilient in order to manage the crises that arise following the birth of a child with BE.
METHODS: This cross-sectional survey included mothers from our IRB-approved Exstrophy-Epispadias Complex Database. A comprehensive questionnaire was administered, incorporating the WHO Quality of Life Questionnaire (WHOQoL-BREF), General Health Questionnaire-28 (GHQ-28), and Connor-Davidson Resilience Scale (CD-RISC). Participants were divided into two groups: Group A included mothers with only one child affected by BE; Group B included mothers with more than one child, one of whom had BE. As a secondary analysis, Group B was subdivided based on whether the affected child was the firstborn or not, to assess the impact of birth order.
RESULTS: Out of 150 mothers who were sent the questionnaire, 76 responded. Twenty-one were in Group A, while 55 were in Group B. Among Group B, 18 mothers (32.7 %) had their first child affected by BE, whereas in the other 37 mothers (67.3 %), the first child was unaffected and one of the subsequent children had BE. The total quality of life score was higher in Group B (3.2 vs. 2.9, p 0.020). Child's age, mother's age, and income had a significant influence on the quality of life score and its domains. The overall mental health score did not differ significantly between the groups (41.0 vs. 38.2, p 0.343). However, the depression domain was notably higher in Group A, indicating greater distress among mothers with only one child (9.4 vs. 6.6, p 0.044). Higher income was negatively associated with depression scores, suggesting a protective effect. The total resilience score was higher for mothers with multiple children (61.0 vs. 50.1, p 0.021). When Group B was divided into two subgroups based on birth order, no differences were observed between their scores across all measures.
CONCLUSIONS: Mothers with several children, including one with BE, reported higher resilience and lower depression scores than those with just one affected child. Quality of life scores were also significantly better for mothers with multiple children. Income and the ages of both mother and child during the study influenced these results. Notably, older child age and higher income were linked to better domain-specific and overall quality-of-life scores. In contrast, older maternal age showed the opposite trend. Additionally, higher income was connected to lower depression scores.
METHODS: This cross-sectional survey included mothers from our IRB-approved Exstrophy-Epispadias Complex Database. A comprehensive questionnaire was administered, incorporating the WHO Quality of Life Questionnaire (WHOQoL-BREF), General Health Questionnaire-28 (GHQ-28), and Connor-Davidson Resilience Scale (CD-RISC). Participants were divided into two groups: Group A included mothers with only one child affected by BE; Group B included mothers with more than one child, one of whom had BE. As a secondary analysis, Group B was subdivided based on whether the affected child was the firstborn or not, to assess the impact of birth order.
RESULTS: Out of 150 mothers who were sent the questionnaire, 76 responded. Twenty-one were in Group A, while 55 were in Group B. Among Group B, 18 mothers (32.7 %) had their first child affected by BE, whereas in the other 37 mothers (67.3 %), the first child was unaffected and one of the subsequent children had BE. The total quality of life score was higher in Group B (3.2 vs. 2.9, p 0.020). Child's age, mother's age, and income had a significant influence on the quality of life score and its domains. The overall mental health score did not differ significantly between the groups (41.0 vs. 38.2, p 0.343). However, the depression domain was notably higher in Group A, indicating greater distress among mothers with only one child (9.4 vs. 6.6, p 0.044). Higher income was negatively associated with depression scores, suggesting a protective effect. The total resilience score was higher for mothers with multiple children (61.0 vs. 50.1, p 0.021). When Group B was divided into two subgroups based on birth order, no differences were observed between their scores across all measures.
CONCLUSIONS: Mothers with several children, including one with BE, reported higher resilience and lower depression scores than those with just one affected child. Quality of life scores were also significantly better for mothers with multiple children. Income and the ages of both mother and child during the study influenced these results. Notably, older child age and higher income were linked to better domain-specific and overall quality-of-life scores. In contrast, older maternal age showed the opposite trend. Additionally, higher income was connected to lower depression scores.