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DOI 10.20960/nh.03720

Медицинская библиотека · Nutricion hospitalaria · 2021

[Home and Ambulatory Artificial Nutrition (NADYA) Group report: home parenteral nutrition in Spain, 2019].

Wanden-Berghe Carmina, Virgili Casas Nuria, Cuerda Compés Cristina, Ramos Boluda Esther, Pereira Cunill José Luis, Maíz Jiménez María Irene, Burgos Peláez Rosa, Gómez Candela Carmen, Penacho Lázaro María Ángeles, Sánchez Martos Eva Ángeles, de Luis Daniel Antonio, Zugasti Murillo Ana, Martínez Faedo Ceferino, Álvarez Hernández Julia, Campos Martín Cristina, Rioja-Vázquez Rosalía, Irles Rocamora Juan Antonio, Díaz Guardiola Patricia, Sanz Paris Alejandro, Matía Martín Pilar, Carabaña Pérez Fátima, Martín Folgueras Tomás, Chinchetru M ª Jesús, Luengo Pérez Luis Miguel, Martínez Costa Cecilia, Tejera Pérez Cristina, Arraiza Irigoyen Carmen, Sánchez-Vilar Burdiel Olga, García Delgado Yaiza, Ponce González Miguel Á, Mauri Roca Sílvia, García Zafra María Victoria, Germán Díaz Marta, Morán López Jesús M, Molina Baeza Begoña, Gonzalo Marín Montserrat, Sánchez Sánchez Rebeca, Calañas Continente Alfonso, Garde Orbaiz Carmen, Martínez Olmos Miguel Ángel, Joaquín Ortiz Clara, Suárez Llanos José Pablo, Forga Visa María de Talló, Gil Martinez M ª Carmen, Carrera Santaliestra María José, Padín López Susana, Lobo Gabriela, Apezetxea Celaya Antxón, Ballesta Sánchez Carmen, Bonada Sanjaume Anna, Cánovas Gaillemin Bárbara, Cardona Pera Daniel, García Puente Ignacio, Higuera Pulgar Isabel, Miserachs Aranda Nuria, Del Olmo García María Dolores, Palma Milla Samara, Parés Marimón Rosa María, Pintor de la Maza Begoña, Sánchez Martos Eva Ángeles

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Аннотация

Aim: to communicate the home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2019. Material and methods: a descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1 to December 31, 2019.

Results

a total of 283 patients (51.9 % women), 31 children, and 252 adults from 47 Spanish hospitals were registered, which represents a prevalence rate of 6.01 patients per million inhabitants for year 2019. The most frequent diagnosis in adults was "palliative oncological" and "others" (21.0 %). In children, it was Hirschsprung's disease together with necrotizing enterocolitis, alterations in intestinal motility, and chronic intestinal pseudo-obstruction, with 4 cases each (12.9 %). The first reason for the indication was short-bowel syndrome in both children (51.6 %) and adults (37.3 %). The most used type of catheter was tunnelled both in children (75.9 %) and in adults (40.8 %). Sixty-eight episodes ended, all in adults, and the most frequent cause was death (54.4 %); 38.2 % were switched to oral.

Conclusions

the number of collaborating centers and professionals in the NADYA registry is increasing. The main indications and reasons for HPN termination remain stable.

Для цитирования: Wanden-Berghe Carmina, Virgili Casas Nuria, Cuerda Compés Cristina, Ramos Boluda Esther, Pereira Cunill José Luis, Maíz Jiménez María Irene, Burgos Peláez Rosa, Gómez Candela Carmen, Penacho Lázaro María Ángeles, Sánchez Martos Eva Ángeles, de Luis Daniel Antonio, Zugasti Murillo Ana, Martínez Faedo Ceferino, Álvarez Hernández Julia, Campos Martín Cristina, Rioja-Vázquez Rosalía, Irles Rocamora Juan Antonio, Díaz Guardiola Patricia, Sanz Paris Alejandro, Matía Martín Pilar, Carabaña Pérez Fátima, Martín Folgueras Tomás, Chinchetru M ª Jesús, Luengo Pérez Luis Miguel, Martínez Costa Cecilia, Tejera Pérez Cristina, Arraiza Irigoyen Carmen, Sánchez-Vilar Burdiel Olga, García Delgado Yaiza, Ponce González Miguel Á, Mauri Roca Sílvia, García Zafra María Victoria, Germán Díaz Marta, Morán López Jesús M, Molina Baeza Begoña, Gonzalo Marín Montserrat, Sánchez Sánchez Rebeca, Calañas Continente Alfonso, Garde Orbaiz Carmen, Martínez Olmos Miguel Ángel, Joaquín Ortiz Clara, Suárez Llanos José Pablo, Forga Visa María de Talló, Gil Martinez M ª Carmen, Carrera Santaliestra María José, Padín López Susana, Lobo Gabriela, Apezetxea Celaya Antxón, Ballesta Sánchez Carmen, Bonada Sanjaume Anna, Cánovas Gaillemin Bárbara, Cardona Pera Daniel, García Puente Ignacio, Higuera Pulgar Isabel, Miserachs Aranda Nuria, Del Olmo García María Dolores, Palma Milla Samara, Parés Marimón Rosa María, Pintor de la Maza Begoña, Sánchez Martos Eva Ángeles. [Home and Ambulatory Artificial Nutrition (NADYA) Group report: home parenteral nutrition in Spain, 2019].. Nutricion hospitalaria. 2021. DOI: 10.20960/nh.03720.

Предметные рубрики MeSH

AdolescentAdultChildFemaleHirschsprung DiseaseHome Care ServicesHumansMaleMiddle AgedNutritional StatusParenteral NutritionRegistriesShort Bowel SyndromeSpain
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