Orphanet journal of rare diseases · 2018
Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta.
СтатьяПоддержка исследования: вне правительства СШАConsensus StatementНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
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Mueller Brigitte, Engelbert Raoul, Baratta-Ziska Frances, Bartels Bart, Blanc Nicole, Brizola Evelise, Fraschini Paolo, Hill Claire, Marr Caroline, Mills Lisa, Montpetit Kathleen, Pacey Verity, Molina Miguel Rodriguez, Schuuring Marleen, Verhille Chantal, de Vries Olga, Yeung Eric Hiu Kwong, Semler Oliver
Аннотация
On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0-18 years with osteogenesis imperfecta.