Orphanet journal of rare diseases · 2020
Best practice guidelines for management of spinal disorders in skeletal dysplasia.
СтатьяПоддержка исследования: вне правительства СШАНазвание и аннотация: Перевод в очереди
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White Klane K, Bober Michael B, Cho Tae-Joon, Goldberg Michael J, Hoover-Fong Julie, Irving Melita, Kamps Shawn E, Mackenzie William G, Raggio Cathleen, Spencer Samantha A, Bompadre Viviana, Savarirayan Ravi, Skeletal Dysplasia Management Consortium
Аннотация
BACKGROUND: Disorders of the spine present a common and difficult management concern in patients with skeletal dysplasia. Due to the rarity of these conditions however, the literature, largely consisting of small, single institution case series, is sparse in regard to well-designed studies to support clinical decision making in these situations.
METHODS: Using the Delphi method, an international, multi-disciplinary group of individuals, with significant experience in the care of patients with skeletal dysplasia, convened to develop multi-disciplinary, "best practice" guidelines in the care of spinal disorders in patients with skeletal dysplasia.
RESULTS: Starting with 33 statements, the group a developed a list of 31 "best practice" guidelines.
CONCLUSIONS: The guidelines are presented and discussed to provide context for clinicians in their decision making in this often-challenging realm of care.
METHODS: Using the Delphi method, an international, multi-disciplinary group of individuals, with significant experience in the care of patients with skeletal dysplasia, convened to develop multi-disciplinary, "best practice" guidelines in the care of spinal disorders in patients with skeletal dysplasia.
RESULTS: Starting with 33 statements, the group a developed a list of 31 "best practice" guidelines.
CONCLUSIONS: The guidelines are presented and discussed to provide context for clinicians in their decision making in this often-challenging realm of care.