[Home and Ambulatory Artificial Nutrition (NADYA) Group Report - Home parenteral nutrition in Spain, 2016].
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Wanden-Berghe Lozano Carmina, Virgili Casas Nuria, Ramos Boluda Esther, Cuerda Compés Cristina, Moreno Villares José Manuel, Pereira Cunill José Luis, Gómez Candela Carmen, Burgos Peláez Rosa, Penacho Lázaro Mª Ángeles, Pérez de la Cruz Antonio, Álvarez Hernández Julia, Gonzalo Marín Montserrat, Matía Martín Pilar, Martínez Faedo Ceferino, Sánchez Martos Eva Ángeles, Sanz Paris Alejandro, Campos Martín Cristina, Martín Folgueras Tomás, Martín Palmero M Ángela, Martín Fontalba María de Los Ángeles, Luengo Pérez Luis Miguel, Zugasti Murillo Ana, Martínez Ramírez María José, Carabaña Pérez Fátima, Martínez Costa Cecilia, Díaz Guardiola Patricia, Tejera Pérez Cristina, Parés Marimón Rosa Mª, Irles Rocamora José Antonio, Garde Orbaiz Carmen, Ponce González Miguel Ángel, García Zafra María Victoria, Sánchez Sánchez Rebeca, Urgeles Planella Juan Ramón, Apezetxea Celaya Antxón, Sánchez-Vilar Burdiel Olga, Joaquín Ortiz Clara, Suárez Llanos José Pablo, Pintor de la Maza Begoña, Leyes García Pere, Gil Martínez Mª Carmen, Mauri Roca Silvia, Carrera Santaliestra María José
Аннотация
MATERIAL AND METHODS: Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2016 to December 31st, 2016.
RESULTS: There were 286 patients from 42 Spanish hospitals (54.2% women), 34 children and 252 adults, with 294 episodes, which represent a prevalence rate of 6.16 patients / million inhabitants / year 2016. The most frequent diagnosis in adults was "palliative cancer" (25.8%), followed by "others". In children it was "motility alterations" with 6 cases (17.6%), Hirschsprung's disease and necrotising enterocolitis, both with 5 children (14.7%). The first indication was short bowel syndrome in both children (64.7%) and adults (37.3%), followed by intestinal obstruction in 28.6% adults and 14.7% in children. The most frequently used type of catheter was tunnelled in both children (70.6%) and adults (37.9%). The most frequent complication in adults was infection related to the catheter, which presented a rate of 0.48 infections / 1,000 days of NPD. During this period, 71 episodes ended in adults and the main cause was death (57.7%) followed by resuming the oral route (31%).
CONCLUSIONS: There is a progressive increase of centers and professional collaborators in the registry who report patients receiving parenteral nutrition at home. The main indications of HPN and the motive for ending have remained stable.