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DOI 10.1111/1467-9566.13559

Медицинская библиотека · Sociology of health & illness · 2022

Expressivist objections to prenatal screening and testing: Perceptions of people living with disability.

Boardman Felicity, Thomas Gareth

СтатьяПоддержка исследования: вне правительства СШАПеревод в очереди

Аннотация

The 'expressivist objection' (EO) refers to the notion that using reproductive (genetic) technologies to prevent the birth of future would-be disabled people contain, and express, a negative valuation of life with disability. Whilst the EO has received increased attention in recent years in line with rapid technological and genomic developments, there remains scant research on how EO concerns are experienced and expressed by disabled people and their families, especially within and between impairment groups. Bringing together two studies-one with adults and family members living with genetic conditions (n = 62) and one with parents of children with Down's syndrome (n = 22)-we argue that disabled people and their families variously embrace, reject or rework the EO across contexts, and yet also frequently situate it within broad support for reproductive technologies. We present three key factors that mediate responses to the EO: (1) the nature of impairment and its integration within identity; (2) social and cultural contexts relating to disability and (3) the (individual and collective) imagined futures of disabled people. In so doing, we blend the conceptual architecture of medical sociology and disability studies, arguing that this allows us to accurately illuminate the nuanced responses of disabled people and their families.

Для цитирования: Boardman Felicity, Thomas Gareth. Expressivist objections to prenatal screening and testing: Perceptions of people living with disability.. Sociology of health & illness. 2022. DOI: 10.1111/1467-9566.13559.

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