England's Dementia Diagnosis Landscape: Strengths, Limitations, and Future Directions.

BACKGROUND

The National Health Service (NHS) England Primary Care Dementia Data (PCDD) provides a comprehensive dementia registry, underpinning national policy to improve diagnosis, care, and support.

METHODS

This paper evaluates the PCDD in comparison with international quality dementia registries (SveDem, NorCog, ADNeT).

RESULTS

We highlight strengths in PCDD coverage and case ascertainment, but also weaknesses in diagnostic specificity and post-diagnostic metrics.

CONCLUSIONS

We review currently collected metrics and discuss potential data expansions, including dementia severity and NICE-approved therapy uptake, alongside new targets, such as an 18-week standard for memory assessment service referrals.