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DOI 10.1038/s41431-018-0252-x

Медицинская библиотека · European journal of human genetics : EJHG · 2018

The Global State of the Genetic Counseling Profession.

Abacan MaryAnn, Alsubaie Lamia, Barlow-Stewart Kristine, Caanen Beppy, Cordier Christophe, Courtney Eliza, Davoine Emeline, Edwards Janice, Elackatt Niby J, Gardiner Kate, Guan Yue, Huang Lian-Hua, Malmgren Charlotta Ingvoldstad, Kejriwal Sahil, Kim Hyon J, Lambert Deborah, Lantigua-Cruz Paulina Araceli, Lee Juliana M H, Lodahl Marianne, Lunde Åshild, Macaulay Shelley, Macciocca Ivan, Margarit Sonia, Middleton Anna, Moldovan Ramona, Ngeow Joanne, Obregon-Tito Alexandra J, Ormond Kelly E, Paneque Milena, Powell Karen, Sanghavi Kunal, Scotcher Diana, Scott Jenna, Juhé Clara Serra, Shkedi-Rafid Shiri, Wessels Tina-Marié, Yoon Sook-Yee, Wicklund Catherine

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Аннотация

The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.

Для цитирования: Abacan MaryAnn, Alsubaie Lamia, Barlow-Stewart Kristine, Caanen Beppy, Cordier Christophe, Courtney Eliza, Davoine Emeline, Edwards Janice, Elackatt Niby J, Gardiner Kate, Guan Yue, Huang Lian-Hua, Malmgren Charlotta Ingvoldstad, Kejriwal Sahil, Kim Hyon J, Lambert Deborah, Lantigua-Cruz Paulina Araceli, Lee Juliana M H, Lodahl Marianne, Lunde Åshild, Macaulay Shelley, Macciocca Ivan, Margarit Sonia, Middleton Anna, Moldovan Ramona, Ngeow Joanne, Obregon-Tito Alexandra J, Ormond Kelly E, Paneque Milena, Powell Karen, Sanghavi Kunal, Scotcher Diana, Scott Jenna, Juhé Clara Serra, Shkedi-Rafid Shiri, Wessels Tina-Marié, Yoon Sook-Yee, Wicklund Catherine. The Global State of the Genetic Counseling Profession.. European journal of human genetics : EJHG. 2018. DOI: 10.1038/s41431-018-0252-x.

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