Caregiving challenges among caregivers of patients with low-vision glaucoma: a qualitative exploration at the Presbyterian Hospital, Agogo, Ghana.

PURPOSE: To understand the challenges faced by family members or friends providing informal care and support to patients with low-vision glaucoma seeking treatment at the Presbyterian Hospital, Agogo in the Ashanti region of Ghana.

METHODS

The study employed a qualitative design using semi-structured in-depth interviews to explore the lived experiences of informal caregivers of patients with low vision due to glaucoma. Participants were purposively selected at the hospital during patients' review visits, as they accompanied them for care. Data were collected through audio-recorded interviews in Akan (Twi) guided by open-ended questions until thematic saturation was achieved. Transcripts were analysed using abductive thematic analysis, combining inductive coding with interpretation informed by the Stress Process Model.

RESULTS

The study involved 11 informal caregivers, out of which 8 were females. The study identified 4 main themes and 10 subthemes. These included caregiving roles (basic activities of daily living, instrumental activities of daily living and emotional support), caregiving challenges (practical challenges, emotional challenges and financial challenges), coping strategies (adaptive and maladaptive coping strategies) and recommendations to clinicians (quantity of medication, review appointments and health education).

CONCLUSION

Caregivers of patients with low-vision glaucoma face practical, financial and emotional challenges that may require caregiver support, patient education and improved access to eye care services. Addressing these needs may be vital to enhance caregiver resilience, reduce caregiver burden and improve patient outcomes.