La Tunisie medicale · 2025
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Аннотация на английскомСтатьяНазвание и аннотация: Перевод в очереди
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Gargouri Rahma, Bouaziz Olfa, Abelhedi Heni, Khemakhem Rim, Yangui Ilhem, Halouani Najla, Feki Walid, Bahloul Najla, Kammoun Samy
Аннотация
INTRODUCTION: When medicine is no longer able to offer hope to a patient, we come up against the dreaded feeling of incurability and the end of life. This frustrating situation is experienced by the doctor and the patient but also by the caregivers who find themselves forced to adapt to it.
AIM: This work was done to study the impact of aid on the lives of caregivers of cancer patients, to measure the burden and study their coping strategies.
METHODS: This was a two-month cross-sectional study of primary caregivers of patients with lung cancer. Burden was measured using the ZARIT abbreviated scale. Anxiety was assessed using the STAI-Y anxiety inventory. Depression was assessed using the BDI questionnaire. Coping mechanisms were assessed using the Brief-COPE.
RESULTS: Seventy-four caregivers were included in the study. Among them, 66% were women, with a mean age of 47.7 years. In 58% of cases, the carer was a spouse. Smoking was noted in 12 carers (16%). Co-addiction to alcohol and tobacco was noted in 5 parents (7%). In 40.5% of cases, help had been provided for 3 to 6 months, and in 70.3% of cases it was provided on a daily basis. In 37.8% of cases, the help lasted more than two hours a day. Carers complained about the lack of information provided about the disease, treatments and what to do in the event of incidents in 41.9% of cases. Welcoming a caregiver at home was reported in 14.8%. Assistance constituted an obstacle to parenthood in 13.5% of cases. The burden score according to the abbreviated Zarit scale was 18.39±11.27 with extremes ranging from 0 to 47. A level of state anxiety varying from average to very high was noted in 47.3 % of cases. A level of trait anxiety varying from medium to very high was noted in 33% of cases. The frequently mentioned source of anxiety was felt responsibility (77%). Fifty-eight percent (58%) of caregivers presented with a depressive syndrome, including 17.6% suffering from severe depression. Among the caregivers surveyed, the most used coping mechanism was focusing on the problem (with a mean of 2.97 and a standard deviation of 0.73). A high burden score was associated with young age (p=0.02), female gender (p-0.001), frequency and nature of help (p=0.05, and p=0.002 respectively), the absence of emotional support (p=0.003), and professional difficulty (p=0.05). Trait anxiety and depression were also associated with burden (p=0.023 and p=0.001) respectively.
CONCLUSION: Undetected, underdiagnosed depression and anxiety in the patient's family circle, particularly in their natural caregivers, hinder the continuity of assistance and alter its quality, hence the need to implement possible improvements, essentially taking in psychological burden which is unfortunately almost absent in our country.
AIM: This work was done to study the impact of aid on the lives of caregivers of cancer patients, to measure the burden and study their coping strategies.
METHODS: This was a two-month cross-sectional study of primary caregivers of patients with lung cancer. Burden was measured using the ZARIT abbreviated scale. Anxiety was assessed using the STAI-Y anxiety inventory. Depression was assessed using the BDI questionnaire. Coping mechanisms were assessed using the Brief-COPE.
RESULTS: Seventy-four caregivers were included in the study. Among them, 66% were women, with a mean age of 47.7 years. In 58% of cases, the carer was a spouse. Smoking was noted in 12 carers (16%). Co-addiction to alcohol and tobacco was noted in 5 parents (7%). In 40.5% of cases, help had been provided for 3 to 6 months, and in 70.3% of cases it was provided on a daily basis. In 37.8% of cases, the help lasted more than two hours a day. Carers complained about the lack of information provided about the disease, treatments and what to do in the event of incidents in 41.9% of cases. Welcoming a caregiver at home was reported in 14.8%. Assistance constituted an obstacle to parenthood in 13.5% of cases. The burden score according to the abbreviated Zarit scale was 18.39±11.27 with extremes ranging from 0 to 47. A level of state anxiety varying from average to very high was noted in 47.3 % of cases. A level of trait anxiety varying from medium to very high was noted in 33% of cases. The frequently mentioned source of anxiety was felt responsibility (77%). Fifty-eight percent (58%) of caregivers presented with a depressive syndrome, including 17.6% suffering from severe depression. Among the caregivers surveyed, the most used coping mechanism was focusing on the problem (with a mean of 2.97 and a standard deviation of 0.73). A high burden score was associated with young age (p=0.02), female gender (p-0.001), frequency and nature of help (p=0.05, and p=0.002 respectively), the absence of emotional support (p=0.003), and professional difficulty (p=0.05). Trait anxiety and depression were also associated with burden (p=0.023 and p=0.001) respectively.
CONCLUSION: Undetected, underdiagnosed depression and anxiety in the patient's family circle, particularly in their natural caregivers, hinder the continuity of assistance and alter its quality, hence the need to implement possible improvements, essentially taking in psychological burden which is unfortunately almost absent in our country.