Journal of pediatric endocrinology & metabolism : JPEM · 2026
Psychosocial adaptation of parents of children with type 1 diabetes: a cross-sectional study.
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Öztürk İlayda Şenol, Gürbüz Fatih, Uğraş Ebru
Аннотация
OBJECTIVES: Type 1 diabetes mellitus (T1D) is a chronic condition that requires continuous management and places a substantial psychosocial burden on families, particularly on parents responsible for daily care. This study aimed to evaluate the psychosocial adaptation of parents of children with T1D and to investigate the relationship between parental psychosocial outcomes and sociodemographic as well as clinical factors.
METHODS: This analytical cross-sectional study was conducted between April and June 2025 at the Pediatric Endocrinology Outpatient Clinic of Ankara Bilkent City Hospital, Türkiye. A total of 328 parents of children aged 0-18 years with T1D were included. Data were collected using a sociodemographic questionnaire, the Parent Diabetes Distress Scale (PDDS), and the Diabetes Family Impact Scale (DFIS). Children's most recent HbA1c levels were obtained from medical records. Statistical analyses were performed using IBM SPSS Statistics version 26.0.
RESULTS: Higher diabetes-related distress and greater family impact were observed among female parents, single parents, and those with lower education and income levels (p<0.05). A weak positive correlation was found between the duration of the child's T1D and perceived financial burden (r=0.21, p<0.05). No significant association was detected between HbA1c levels and parental psychosocial adaptation. PDDS and DFIS total scores showed a moderate positive correlation (r=0.43, p<0.001).
CONCLUSIONS: Parents of children with T1D experience significant psychosocial challenges influenced mainly by sociodemographic factors rather than glycemic control. Integrating psychosocial screening and family-centered support into pediatric diabetes care and primary health services may improve family well-being.
METHODS: This analytical cross-sectional study was conducted between April and June 2025 at the Pediatric Endocrinology Outpatient Clinic of Ankara Bilkent City Hospital, Türkiye. A total of 328 parents of children aged 0-18 years with T1D were included. Data were collected using a sociodemographic questionnaire, the Parent Diabetes Distress Scale (PDDS), and the Diabetes Family Impact Scale (DFIS). Children's most recent HbA1c levels were obtained from medical records. Statistical analyses were performed using IBM SPSS Statistics version 26.0.
RESULTS: Higher diabetes-related distress and greater family impact were observed among female parents, single parents, and those with lower education and income levels (p<0.05). A weak positive correlation was found between the duration of the child's T1D and perceived financial burden (r=0.21, p<0.05). No significant association was detected between HbA1c levels and parental psychosocial adaptation. PDDS and DFIS total scores showed a moderate positive correlation (r=0.43, p<0.001).
CONCLUSIONS: Parents of children with T1D experience significant psychosocial challenges influenced mainly by sociodemographic factors rather than glycemic control. Integrating psychosocial screening and family-centered support into pediatric diabetes care and primary health services may improve family well-being.