Archives of physical medicine and rehabilitation · 2014
Phenomenological study of neurogenic bowel from the perspective of individuals living with spinal cord injury.
СтатьяПоддержка исследования: вне правительства СШАНазвание и аннотация: Перевод пока не подготовлен
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Burns Anthony S, St-Germain Daphney, Connolly Maureen, Delparte Jude J, Guindon Andréanne, Hitzig Sander L, Craven B Catharine
Аннотация
OBJECTIVE: To gain greater insight into the lived experience of individuals with spinal cord injury (SCI) and neurogenic bowel dysfunction (NBD).
DESIGN: Qualitative (phenomenologic) interviews and analysis.
SETTING: Community.
PARTICIPANTS: Individuals with SCI and NBD (N=19) residing in the community.
INTERVENTIONS: Not applicable.
MAIN OUTCOME MEASURE: Concerns related to living with NBD after SCI.
RESULTS: Challenges related to living with SCI and NBD included costs and requirements, emotional impact, diet, education and employment, intimacy and interpersonal relations, social participation, spontaneity and daily schedule, travel, lack of appropriate and consistent assistance, loss of autonomy (independence, privacy), lack of predictability and fear of incontinence, medical complications, pain or discomfort, physical effort of the bowel routine, physical experience, and time requirements.
CONCLUSIONS: Living with NBD presents many challenges. When categorized according to the International Classification of Functioning, Disability and Health, identified domains include body functions and structures, activity, participation, environmental factors, and personal factors. Identified issues have implications for improving clinical management and should be assessed when determining the impact and efficacy of interventions.
DESIGN: Qualitative (phenomenologic) interviews and analysis.
SETTING: Community.
PARTICIPANTS: Individuals with SCI and NBD (N=19) residing in the community.
INTERVENTIONS: Not applicable.
MAIN OUTCOME MEASURE: Concerns related to living with NBD after SCI.
RESULTS: Challenges related to living with SCI and NBD included costs and requirements, emotional impact, diet, education and employment, intimacy and interpersonal relations, social participation, spontaneity and daily schedule, travel, lack of appropriate and consistent assistance, loss of autonomy (independence, privacy), lack of predictability and fear of incontinence, medical complications, pain or discomfort, physical effort of the bowel routine, physical experience, and time requirements.
CONCLUSIONS: Living with NBD presents many challenges. When categorized according to the International Classification of Functioning, Disability and Health, identified domains include body functions and structures, activity, participation, environmental factors, and personal factors. Identified issues have implications for improving clinical management and should be assessed when determining the impact and efficacy of interventions.