Медицинская библиотека · Italian journal of dermatology and venereology · 2024

Italian National Registry of Alopecia Areata: an epidemiological study of 699 Italian patients.

Piraccini Bianca Maria, Rapparini Luca, Quadrelli Federico, Alessandrini Aurora, Bruni Francesca, Cedirian Stephano, Pampaloni Francesca, Marcelli Emanuela, Bortolani Barbara, Giampieri Enrico, Gallo Giuseppe, Torrelli Francesca, Sciamarrelli Nadia, Quaglino Pietro, Tomasini Carlo, Barruscotti Stefania, Ambrogio Francesca, Foti Caterina, Picciallo Michele, Caro Gemma, Rossi Alfredo, Pellacani Giovanni, Ala Lorenzo, Acri Maria Cristina, Diluvio Laura, Matteini Enrico, Bianchi Luca, Argenziano Giuseppe, Babino Graziella, Fulgione Elisabetta, Gnesotto Laura, Sechi Andrea, Naldi Luigi, Tassone Francesco, Peris Ketty, Caldarola Giacomo, Caposiena Caro Raffaele Dante, Bazzacco Giulia, Zalaudek Iris, Vastarella Maria, Cantelli Mariateresa, Patrì Angela, Dall'oglio Federica, Lacarrubba Francesco, Micali Giuseppe, Fraghì Alessandro, Boccaletti Valeria, Marzano Angelo Valerio, Barbareschi Mauro, Silvio Martina, Vagnozzi Emanuele, Fargnoli Maria Concetta, Caponio Chiara, Atzori Laura, Sanna Silvia, Anedda Jasmine, Feliciani Claudio, DE Felici Del Giudice Maria Beatrice, Scandagli Ilaria, Prignano Francesca, Rongioletti Franco, Podo Brunetti Antonio, Bigotto Gianmarco D, Offidani Anna Maria, Simonetti Oriana, Lembo Serena, Raimondo Annunziata, Balestri Riccardo, Ioris Tommaso, Gisondi Paolo, Bellinato Francesco, Trovato Emanuele, Cinotti Elisa, Papini Manuela, Cicoletti Michela, Corazza Monica, Starace Michela

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Аннотация

BACKGROUND

Alopecia areata (AA) is an organ-specific autoimmune disease that affects the hair follicles of the scalp and the rest of the body causing hair loss. Due to the unpredictable course of AA and the different degrees of severity of hair loss, only a few well-designed clinical studies with a low number of patients are available. Also, there is no specific cure, but topical and systemic anti-inflammatory and immune system suppressant drugs are used for treatment. The need to create a global registry of AA, comparable and reproducible in all countries, has recently emerged. An Italian multicentric electronic registry is proposed as a model to facilitate and guide the recording of epidemiological and clinical data and to monitor the introduction of new therapies in patients with AA.

METHODS

The aim of this study was to evaluate the epidemiological data of patients with AA by collecting detailed information on the course of the disease, associated diseases, concomitant and previous events, and the clinical response to traditional treatments. Estimate the impact on the quality of life of patients.

RESULTS

The creation of the National Register of AA has proven to be a valid tool for recording, with a standardized approach, epidemiological data, the trend of AA, response to therapies and quality of life.

CONCLUSIONS

AA is confirmed as a difficult hair disease to manage due to its unpredictable course and, in most cases, its chronic-relapsing course, capable of having a significant impact on the quality of life of patients.

Для цитирования: Piraccini Bianca Maria, Rapparini Luca, Quadrelli Federico, Alessandrini Aurora, Bruni Francesca, Cedirian Stephano, Pampaloni Francesca, Marcelli Emanuela, Bortolani Barbara, Giampieri Enrico, Gallo Giuseppe, Torrelli Francesca, Sciamarrelli Nadia, Quaglino Pietro, Tomasini Carlo, Barruscotti Stefania, Ambrogio Francesca, Foti Caterina, Picciallo Michele, Caro Gemma, Rossi Alfredo, Pellacani Giovanni, Ala Lorenzo, Acri Maria Cristina, Diluvio Laura, Matteini Enrico, Bianchi Luca, Argenziano Giuseppe, Babino Graziella, Fulgione Elisabetta, Gnesotto Laura, Sechi Andrea, Naldi Luigi, Tassone Francesco, Peris Ketty, Caldarola Giacomo, Caposiena Caro Raffaele Dante, Bazzacco Giulia, Zalaudek Iris, Vastarella Maria, Cantelli Mariateresa, Patrì Angela, Dall'oglio Federica, Lacarrubba Francesco, Micali Giuseppe, Fraghì Alessandro, Boccaletti Valeria, Marzano Angelo Valerio, Barbareschi Mauro, Silvio Martina, Vagnozzi Emanuele, Fargnoli Maria Concetta, Caponio Chiara, Atzori Laura, Sanna Silvia, Anedda Jasmine, Feliciani Claudio, DE Felici Del Giudice Maria Beatrice, Scandagli Ilaria, Prignano Francesca, Rongioletti Franco, Podo Brunetti Antonio, Bigotto Gianmarco D, Offidani Anna Maria, Simonetti Oriana, Lembo Serena, Raimondo Annunziata, Balestri Riccardo, Ioris Tommaso, Gisondi Paolo, Bellinato Francesco, Trovato Emanuele, Cinotti Elisa, Papini Manuela, Cicoletti Michela, Corazza Monica, Starace Michela. Italian National Registry of Alopecia Areata: an epidemiological study of 699 Italian patients.. Italian journal of dermatology and venereology. 2024. DOI: 10.23736/s2784-8671.24.07934-9.

Предметные рубрики MeSH

Alopecia Areata Humans Registries Italy Male Female Adult Middle Aged Adolescent Young Adult Child Quality of Life Aged Child, Preschool

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