Impact of telenursing-based family empowerment program on self-efficacy and treatment adherence in children with cystic fibrosis "telenursing and CF".

PURPOSE: This study aimed to investigate the impact of a telenursing-based family empowerment program on self-efficacy and treatment adherence in children with cystic fibrosis (CF).

DESIGN AND

METHODS

This is a clinical trial study conducted on CF patients between 9 and 17 who were randomly assigned to two groups: an intervention group (received twelve-week telenursing training via the SendBig website and Skype messenger) or a control group (routine care). The child and caregiver demographic information questionnaire, Pediatric Rating of Chronic Illness Self-Efficacy, and Adherence to Treatment Questionnaire were evaluated before, immediately, and one month after the intervention. The results were analyzed using SPSS V26, considering a significant level.

RESULTS

A total of 50 patients were recruited for this study (25 in each group). The results showed a significant difference in the mean total scores of self-efficacy and treatment adherence between the two groups, immediately and one month after the intervention (P-value < 0.001). In addition, intra-group comparisons showed that the impact of time was significant in the intervention group (P-value < 0.001).

CONCLUSION

Considering the improvement of self-efficacy and treatment adherence in the intervention group, it is recommended to use a telenursing-based family empowerment program for children with CF.

IMPLICATIONS TO PRACTICE: The findings support the integration of telenursing-based family empowerment programs into routine nursing practice to promote long-term disease management and family-centered care.