Journal of pediatric psychology · 2026
Exploring feasibility of clinical psychology as a model of care for families affected by congenital cytomegalovirus.
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Coppock Clare, Hurlston Rosie, Johnson Sarah May, Burkhardt Ingrid, Lyall Hermione, Payne Helen
Аннотация
OBJECTIVES: Congenital cytomegalovirus (cCMV) is the leading infectious cause of hearing loss and neurodevelopmental impairment in children, yet the psychosocial impact has only recently begun to be explored. The objectives of this study were to describe the experiences of children and families affected by cCMV, and examine the use of clinical psychology as a model of care.
METHODS: Thirty-four families were recruited from a specialist cCMV clinic and invited to access developmental assessment and individual formulation-based clinical psychology intervention, including facilitated parent peer support.
RESULTS: Birth mothers were significantly more stressed than fathers, and poorer parental well-being was associated with negative perception of life changes following cCMV diagnosis, but not related to disease severity. Following clinical psychology intervention, parents reported significant improvements in understanding and confidence in managing their child's needs. However, well-being remained varied, which may reflect the ongoing prognostic uncertainty of having a child with cCMV. Thematic analysis of parental experiences identified five themes: (1) processing the experience of cCMV, (2) disrupted newborn phase, (3) relationship to healthcare, (4) lack of shared experiences, and (5) raising awareness.
CONCLUSION: Clinical psychology was positively received as a protected space to explore and validate the emotional impact of cCMV, and facilitate connection with others who share personal experience of cCMV. The findings support the use of embedded clinical psychology provision for families affected by cCMV, and the importance of increasing cCMV awareness to improve pathways of care and reduce psychological distress.
METHODS: Thirty-four families were recruited from a specialist cCMV clinic and invited to access developmental assessment and individual formulation-based clinical psychology intervention, including facilitated parent peer support.
RESULTS: Birth mothers were significantly more stressed than fathers, and poorer parental well-being was associated with negative perception of life changes following cCMV diagnosis, but not related to disease severity. Following clinical psychology intervention, parents reported significant improvements in understanding and confidence in managing their child's needs. However, well-being remained varied, which may reflect the ongoing prognostic uncertainty of having a child with cCMV. Thematic analysis of parental experiences identified five themes: (1) processing the experience of cCMV, (2) disrupted newborn phase, (3) relationship to healthcare, (4) lack of shared experiences, and (5) raising awareness.
CONCLUSION: Clinical psychology was positively received as a protected space to explore and validate the emotional impact of cCMV, and facilitate connection with others who share personal experience of cCMV. The findings support the use of embedded clinical psychology provision for families affected by cCMV, and the importance of increasing cCMV awareness to improve pathways of care and reduce psychological distress.