British journal of nursing (Mark Allen Publishing) · 2026
The experience of caregivers of patients affected by Parkinson's who have undergone deep brain stimulation.
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Esposito Vincenzo
Аннотация
BACKGROUND: Parkinson's is a neurodegenerative condition that has a critical impact on every aspect of the affected individual's life and also on their caregiver. A neurosurgery procedure called deep brain stimulation (DBS) has improved motor symptoms in some patients. DBS is one of the options offered to eligible candidates affected by Parkinson's; however, this pathway may cause both physical and psychological problems for patients and their caregivers.
AIMS: To explore the experiences of caregivers of patients with Parkinson's who have undergone DBS, to further understand their needs, and to identify possible mechanisms of future support.
METHODS: Qualitative semi-structured interviews have been conducted using an online platform with a convenience sample.
FINDINGS: Six themes and one subtheme were identified: suboptimal communication from the service provider; poor healthcare support that also increased the risk of the subtheme 'burnout'; carers' feelings of invisibility; impact on the carer-patient relationship; personal sacrifices of caregivers; and social isolation.
CONCLUSION: DBS impacts on the relationship between caregivers and patients. Carers require more information on post-DBS life from service providers, as well as education on the management of patients after DBS.
AIMS: To explore the experiences of caregivers of patients with Parkinson's who have undergone DBS, to further understand their needs, and to identify possible mechanisms of future support.
METHODS: Qualitative semi-structured interviews have been conducted using an online platform with a convenience sample.
FINDINGS: Six themes and one subtheme were identified: suboptimal communication from the service provider; poor healthcare support that also increased the risk of the subtheme 'burnout'; carers' feelings of invisibility; impact on the carer-patient relationship; personal sacrifices of caregivers; and social isolation.
CONCLUSION: DBS impacts on the relationship between caregivers and patients. Carers require more information on post-DBS life from service providers, as well as education on the management of patients after DBS.