Patient education and counseling · 2026
Truth-telling experiences and preferences of school-aged children with acute lymphoblastic leukemia: A phenomenological study.
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Chiou Yen-Gan, Wu Hui-Chuan, Wu Li-Min, Shyu Yea-Ing Lotus, Chiang Yi-Chien, Hsiao Chih-Cheng, Tang Woung-Ru
Аннотация
OBJECTIVES: Truth-telling in pediatric oncology remains challenging, and school-aged children's perspectives are seldom directly examined. This study explored diagnostic disclosure experiences and perceived communication preferences among school-aged children with acute lymphoblastic leukemia (ALL).
METHODS: This study employed a descriptive phenomenological design. Data were collected between August 2019 and May 2020 through semi-structured individual interviews with 15 school-aged children diagnosed with ALL. Interviews were analyzed using Colaizzi's method to identify emerging themes.
RESULTS: Two primary themes were identified: (1) "Vague understanding of illness," reflecting children's experiences of limited or indirect disclosure within a parent-centered communication culture, intuitive awareness, and ambivalence about knowing; and (2) "Children's preferences for child-centered truth-telling," describing children's expressed preferences for information that aligned with their readiness, supported self-care, and was communicated in clear, gentle, and age-appropriate ways.
CONCLUSIONS: These findings should be understood as context-specific and exploratory, reflecting school-aged children's perspectives on diagnostic disclosure within a family-centered cultural context.
PRACTICE IMPLICATIONS: These findings may inform pediatric healthcare professionals about children's perspectives on diagnostic disclosure and underscore the relevance of developmentally sensitive, child-inclusive communication approaches in pediatric oncology care.
METHODS: This study employed a descriptive phenomenological design. Data were collected between August 2019 and May 2020 through semi-structured individual interviews with 15 school-aged children diagnosed with ALL. Interviews were analyzed using Colaizzi's method to identify emerging themes.
RESULTS: Two primary themes were identified: (1) "Vague understanding of illness," reflecting children's experiences of limited or indirect disclosure within a parent-centered communication culture, intuitive awareness, and ambivalence about knowing; and (2) "Children's preferences for child-centered truth-telling," describing children's expressed preferences for information that aligned with their readiness, supported self-care, and was communicated in clear, gentle, and age-appropriate ways.
CONCLUSIONS: These findings should be understood as context-specific and exploratory, reflecting school-aged children's perspectives on diagnostic disclosure within a family-centered cultural context.
PRACTICE IMPLICATIONS: These findings may inform pediatric healthcare professionals about children's perspectives on diagnostic disclosure and underscore the relevance of developmentally sensitive, child-inclusive communication approaches in pediatric oncology care.