Epilepsy & behavior : E&B · 2025
Prevalence and associated clinico-psychosocial factors of caregiver burden among family caregivers of adults with epilepsy: A cross-sectional study from a Tertiary Care Centre in India.
СтатьяНазвание и аннотация: Перевод пока не подготовлен
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Nema Shubhi, Amudhan Senthil, Mundlamuri Ravindranadh Chowdary, Dagar Vaishali, Tiwari Hemant Kumar, Arichandran Priyanthi, Rao Girish Nagaraja
Аннотация
OBJECTIVE: Despite the considerable burden of caregiving for persons with epilepsy (PwE), evidence from resource-limited settings remains sparse. This study aimed to assess caregiver burden and its associated factors among caregivers of PwE in a resource-limited setting.
METHODS: A hospital-based cross-sectional study was conducted in a tertiary care setting in India. Data were collected from primary caregivers of adult PwE through interviews using a comprehensive questionnaire assessing socio-demographics of patients and caregivers, clinical characteristics of PwE, caregiver burden, and associated psychosocial factors (depression, anxiety, and stigma). Descriptive statistics were used to describe the prevalence of caregiver burden, and multivariable linear regression analysis was used to identify associated factors.
RESULTS: Among 306 completed interviews, the mean caregiver burden score was 36.8 (SD = 11.8), and 35 % of participants had moderate-to-severe burden. Caregiver burden correlated positively with anxiety (r = 0.7, p < 0.01), depression (r = 0.6, p < 0.01), and stigma (r = 0.6, p < 0.01). In the final model, caregiver burden was significantly higher among caregivers who were married, unemployed, missed more workdays, and frequently visited NFHCPs (Non-Formal Health Care Providers). Psychosocial variables such as anxiety, depression, and stigma were also associated with caregiver burden. Standardized beta coefficients indicated stigma had the strongest association (β = 0.34), followed by anxiety (β = 0.32) and depression (β = 0.19).
CONCLUSION: A substantial proportion of caregivers experienced moderate-to-severe burden, significantly associated with anxiety, depression, and stigma. Targeted interventions addressing caregiver mental health and stigma may reduce burden and improve comprehensive epilepsy care.
METHODS: A hospital-based cross-sectional study was conducted in a tertiary care setting in India. Data were collected from primary caregivers of adult PwE through interviews using a comprehensive questionnaire assessing socio-demographics of patients and caregivers, clinical characteristics of PwE, caregiver burden, and associated psychosocial factors (depression, anxiety, and stigma). Descriptive statistics were used to describe the prevalence of caregiver burden, and multivariable linear regression analysis was used to identify associated factors.
RESULTS: Among 306 completed interviews, the mean caregiver burden score was 36.8 (SD = 11.8), and 35 % of participants had moderate-to-severe burden. Caregiver burden correlated positively with anxiety (r = 0.7, p < 0.01), depression (r = 0.6, p < 0.01), and stigma (r = 0.6, p < 0.01). In the final model, caregiver burden was significantly higher among caregivers who were married, unemployed, missed more workdays, and frequently visited NFHCPs (Non-Formal Health Care Providers). Psychosocial variables such as anxiety, depression, and stigma were also associated with caregiver burden. Standardized beta coefficients indicated stigma had the strongest association (β = 0.34), followed by anxiety (β = 0.32) and depression (β = 0.19).
CONCLUSION: A substantial proportion of caregivers experienced moderate-to-severe burden, significantly associated with anxiety, depression, and stigma. Targeted interventions addressing caregiver mental health and stigma may reduce burden and improve comprehensive epilepsy care.