Journal of pediatric nursing · 2026
The lived experiences of parents of children with cerebral palsy. A phenomenological study in a tertiary care facility, Ghana.
СтатьяНазвание и аннотация: Перевод в очереди
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Nimota Ruth Nkpezah, Atame Ndekugri Damata Huldah, Konlan Kennedy Diema
Аннотация
INTRODUCTION: Cerebral palsy is a group of permanent movement disorders that appear in early childhood, affecting muscle tone, posture, and movement. This study explored the lived experiences of parents of children with cerebral palsy.
METHOD: A phenomenological qualitative research approach was used to collect data from parents of children with cerebral palsy. Interviews were conducted with purposely selected parents of children until data saturation at the 13th interview. Data was analysed using thematic analysis. Four themes were identified and included: 1) burden of caring for children with cerebral palsy, 2) impact of diagnosis on family and other socioeconomic factors, 3) coping mechanisms and support systems, and 4) factors influencing care experience.
RESULTS: Parents reported significant physical, emotional, and financial burdens associated with caring for children with cerebral palsy and relied on personal resilience, support from family and friends, and faith-based practices to manage their stress. Parents reported positive and supportive relationships with healthcare professionals. Access to support groups, community resources, and specialized services varied significantly among participants, impacting their ability to manage their child's condition effectively. Parents with better access to these resources reported a higher quality of life and better coping mechanisms.
CONCLUSION: This study underscores the need for improved healthcare practices and policies to prioritize comprehensive support for families of children with cerebral palsy.
IMPLICATIONS TO PRACTICE: Key strategies for supporting parents of children with cerebral palsy included establishing structured routines, effective planning and organization, prioritising self-care, seeking social support, utilizing professional help, and maintaining flexibility.
METHOD: A phenomenological qualitative research approach was used to collect data from parents of children with cerebral palsy. Interviews were conducted with purposely selected parents of children until data saturation at the 13th interview. Data was analysed using thematic analysis. Four themes were identified and included: 1) burden of caring for children with cerebral palsy, 2) impact of diagnosis on family and other socioeconomic factors, 3) coping mechanisms and support systems, and 4) factors influencing care experience.
RESULTS: Parents reported significant physical, emotional, and financial burdens associated with caring for children with cerebral palsy and relied on personal resilience, support from family and friends, and faith-based practices to manage their stress. Parents reported positive and supportive relationships with healthcare professionals. Access to support groups, community resources, and specialized services varied significantly among participants, impacting their ability to manage their child's condition effectively. Parents with better access to these resources reported a higher quality of life and better coping mechanisms.
CONCLUSION: This study underscores the need for improved healthcare practices and policies to prioritize comprehensive support for families of children with cerebral palsy.
IMPLICATIONS TO PRACTICE: Key strategies for supporting parents of children with cerebral palsy included establishing structured routines, effective planning and organization, prioritising self-care, seeking social support, utilizing professional help, and maintaining flexibility.