Women's health (London, England) · 2025
A participatory systematic review on human rights and the birth of a child with albinism in sub-Saharan Africa.
СтатьяСистематический обзорНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Reimer-Kirkham Sheryl, Rieger Kendra, Astle Barbara, Buyco Meghann, Daklo Kwame Andrews, Dixon Duncan, Ero Ikponwosa, Ibhawoh Bonny, Keitseomore Ingrid Tshegofatso, Kromberg Jennifer, Lang Michael, Leech Ronell, Mazibuko Nomasonto, Mokwele Tumisho, Nesengani Tintswalo Victoria, Ohene Lillian, Senkoro Perpetua, Siaity-Pallangyo Eunice, Terblanche Landa, Tettey Wisdom, Tjope Mpho, Tshuma Lorraine, Watts Ingrid, Wilson Jessica, Mooa Ramadimetja Shirley
Аннотация
BACKGROUND: The period surrounding birth is a crucial and determining time for many women, particularly for those who give birth to a child with albinism (CWA) due to the stigma, discrimination, and threat to safety they immediately encounter, altering their life trajectory.
OBJECTIVES: To synthesize existing evidence on the human rights surrounding the birth of a baby with albinism in sub-Saharan Africa.
DESIGN: We conducted an integrative review through a critical participatory approach. Our review question was; What are the experiences surrounding the birth of a CWA for the mother and father and their carers in sub-Saharan Africa?
DATA SOURCES AND METHODS: Our study included 35 academic and 47 gray literature articles and reports (for a total of 82 sources) from 9 academic databases and hand searches with relevant sources. We employed a convergent integrated approach to data synthesis and thematic analysis methods.Our study included 82 academic and gray literature articles and reports from 9 academic databases and hand searches with relevant sources.
RESULTS: Drawing on African-based perspectives, together with strengths-based, trauma- and violence-informed care, we analyzed the complex lived experiences of mothers who have given birth to a CWA and explored potential sites for transformative change. We identified four themes: (1) Immediate Experiences: The Life-Defining Moment of Birth synthesized the experiences and responses of mothers, families, communities, and health providers to a birth to a baby with albinism; (2) Violent Response to the Birth of a Baby with Albinism depicted the obstetrical violence, symbolic violence of stigma, discrimination, and social exclusion, gendered and sexualized violence, and violence against the baby with albinism; (3) Mediating Sites of Structural Violence and Protective Factors revealed the multiple and interlocking structural sites that deepen the violence shaping the birth experience; and (4) State as Duty Bearer: Human Rights Obligations and the Policy Determinants of Health spotlighted the gaps of and recommendations to the States as duty bearers.
CONCLUSION: Our review revealed not only a matrix of structural violence that characterizes the experience of mothers but also protective factors that become visible with a strengths-based framing.
REGISTRATION: Open Science Framework (OSF) registration, DOI https://doi.org/10.17605/OSF.IO/83KMC.
OBJECTIVES: To synthesize existing evidence on the human rights surrounding the birth of a baby with albinism in sub-Saharan Africa.
DESIGN: We conducted an integrative review through a critical participatory approach. Our review question was; What are the experiences surrounding the birth of a CWA for the mother and father and their carers in sub-Saharan Africa?
DATA SOURCES AND METHODS: Our study included 35 academic and 47 gray literature articles and reports (for a total of 82 sources) from 9 academic databases and hand searches with relevant sources. We employed a convergent integrated approach to data synthesis and thematic analysis methods.Our study included 82 academic and gray literature articles and reports from 9 academic databases and hand searches with relevant sources.
RESULTS: Drawing on African-based perspectives, together with strengths-based, trauma- and violence-informed care, we analyzed the complex lived experiences of mothers who have given birth to a CWA and explored potential sites for transformative change. We identified four themes: (1) Immediate Experiences: The Life-Defining Moment of Birth synthesized the experiences and responses of mothers, families, communities, and health providers to a birth to a baby with albinism; (2) Violent Response to the Birth of a Baby with Albinism depicted the obstetrical violence, symbolic violence of stigma, discrimination, and social exclusion, gendered and sexualized violence, and violence against the baby with albinism; (3) Mediating Sites of Structural Violence and Protective Factors revealed the multiple and interlocking structural sites that deepen the violence shaping the birth experience; and (4) State as Duty Bearer: Human Rights Obligations and the Policy Determinants of Health spotlighted the gaps of and recommendations to the States as duty bearers.
CONCLUSION: Our review revealed not only a matrix of structural violence that characterizes the experience of mothers but also protective factors that become visible with a strengths-based framing.
REGISTRATION: Open Science Framework (OSF) registration, DOI https://doi.org/10.17605/OSF.IO/83KMC.