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Development and validation of AI-based chatbot for self-management in liver transplant recipients.

AIMS: Liver transplant recipients require complex self-management after transplantation. This study aimed to validate an artificial intelligence (AI)-based chatbot designed to support self-management. METHODS: A mixed-methods study was conducted at a medical center in Northern Taiwan (October 2022-December 2024). The chatbot was developed through four stages: creation of a self-management Q&A database, system development, validation, and usability testing. Interview findings from patients and healthcare professionals informed the database. The chatbot was deployed via LINE@ using a hybrid fra…

Development and validation of a self-management efficacy questionnaire for patients with Fabry disease in China.

BACKGROUND: Fabry disease (FD) is a rare X-linked lysosomal storage disorder that impacts the quality of life of patients due to its progressive course, the demands of daily self-management, emotional burden and other subjective experiences. This study aimed to assess the self-management efficacy of patients with FD, identify influencing factors and examine the relationship between quality of life and self-management efficacy to support the development of personalized treatment plans. METHODS: A cross-sectional study was conducted from March to May 2024 involving 529 patients with FD in China…

A Scoping Review of Health-Related Self-Management Approaches for Adults With Intellectual Disabilities.

BACKGROUND: The global rise in chronic health conditions highlights the importance of self-management in empowering people to actively participate in their healthcare. People with intellectual disabilities are disproportionately affected by these conditions and face barriers in accessing self-management interventions. METHOD: This scoping review mapped literature on self-management approaches for adults with intellectual disabilities. A three-step search strategy was employed, involving electronic databases, reference lists, and advocacy organisation websites. Data on study design, interventi…

Effectiveness of Self-Management Education for Deaf Individuals With Hypertension: A Quasi-Experimental Study.

In South Korea, hypertension (HTN) is prevalent among deaf individuals, with a reported rate of 63.9%, which is higher than in the general population. To manage this condition effectively, a self-management education intervention is needed. In particular, since deaf individuals generally exhibit low levels of health literacy, it is essential to develop interventions that consider their limited health literacy. This study evaluates the impact of the Hypertension Self-Management Education for the Hearing Impaired Using Sign Language (H-SMILE) program. Using a quasi-experimental, nonequivalent co…

The effect of a combined mHealth and community health worker intervention on HIV self-management.

OBJECTIVE: To identify demographic, social, and clinical factors associated with HIV self-management and evaluate whether the CHAMPS intervention is associated with changes in an individual's HIV self-management. METHOD: This study was a secondary data analysis from a randomized controlled trial evaluating the effects of the CHAMPS, a mHealth intervention with community health worker sessions, on HIV self-management in New York City (NYC) and Birmingham. Group comparisons and linear regression analyses identified demographic, social, and clinical factors associated with HIV self-management. W…

Perceived Readiness and Barriers to Self-Management in Pediatric Atopic Dermatitis Patients and Parents.

BACKGROUND: Adolescents and young adults (AYA) with atopic dermatitis (AD) must transition from caregiver-led to self-managed care and eventually to adult healthcare providers. While transition readiness is well studied in other chronic conditions, it remains underexplored in AD. This study assesses transition readiness and perceived barriers to self-management among AYA with AD and parents of AYA. METHODS: A cross-sectional, online survey was conducted from June to July 2024 by the National Eczema Association among US-based AYA (ages 12-22) with AD and parents of AYA with AD. Transition read…

User-reported quality of self-managed medication abortion by care source in Nigeria.

OBJECTIVES: To evaluate and compare self-managed abortion (SMA) user-reported quality of care between users accessing a safe abortion hotline versus proprietary patent medicine vendors (PPMVs) that provide medicines to rural communities in Nigeria, and identify factors associated with increases in total quality scores and key indicators of abortion access and information provision. METHODS: We leveraged exit surveys and 30-day follow-up data collected from users of a safe abortion hotline and PPMVs in Nigeria used to develop the Abortion Care Quality Tool (ACQTool). We used bivariate statisti

The Role of Social Support on Self-Management of Gestational Diabetes Mellitus: A Qualitative Analysis.

INTRODUCTION: Given the rising incidence and importance of treatment adherence for gestational diabetes (GDM), this study aimed to examine p … DISCUSSION: Harnessing social support may be a key strategy to activate and sustain lifestyle and self-management skills in GDM and should be considered in intervention development.

Addressing implementation challenges in the delivery of an epilepsy self-management program in community settings.

AIMS: This report describes implementation of the SMART epilepsy self-management (ESM) program in a community setting. METHODS: SMART was implemented by 3 epilepsy-focused social services agencies. Pre/Post outcomes included past 30-day seizure frequency, the 9-item Patient Health Questionnaire (PHQ-9), the 10-item Quality of Life in Epilepsy (QOLIE-10) and the 7-item Generalized Anxiety Disorder (GAD-7) scale. RESULTS: There have been 8 nurses (mean age 63.6, SD 9.1) and 14 peer educators trained (mean age 44.3, SD 15.8, having epilepsy a mean of 18.2, SD 11.1 years). Mean number of SMART s…

Journey of Hope for Patients with Fibromyalgia: From Diagnosis to Self-Management-A Qualitative Study.

BACKGROUND/OBJECTIVES: Fibromyalgia syndrome (FMS) is a chronic, debilitating condition characterized by widespread pain, fatigue, and psych … ients' experiences with the syndrome, symptoms, searching for a doctor, pharmacological management, self-management, and the impact of fibromyalgia and peer support. Most posts and comments focused on patients' experiences with self-management approaches and coping strategies, highlighting significant noncompliance with therapeutic modalities. Factors influencing …

Exercise therapy and self-management support for individuals with multimorbidity: a randomized and controlled trial.

Despite increasing individual and societal burden, evidence for effective management strategies of multimorbidity is missing. Exercise therapy and self-management support are promising interventions, but their effect has not been evaluated. We hypothesized that exercise therapy and self-management support were superior to usual care alone in improving health-related quality of life (HRQoL) in individuals with multimorbidity. In this pragmatic multicenter, assessor-blinded randomized controlled trial (MOBILIZE), we enrolled 228 adult patients with two or more selected long-term conditions that …

Нетерпимость к неопределенности, Симптомности и саморегулированию болезней у пациентов с множественным склерозом.

КОЛИЧЕСТВО: Лица, у которых диагностирован множественный склероз (PwMS), могут испытывать неопределенность в отношении этиологии, симптомов, лечения и курса болезни. У этих пациентов нетерпимость к неопределенности может также затруднить лечение заболеваний. МЕТОДЫ: В этом исследовании используется описательная и корреляционная схема для изучения взаимосвязи между нетерпимостью к неопределенности, остротой симптомов и саморегулированием болезней у пациентов, страдающих НР. В исследование было включено в общей сложности 105 пациентов с MS, прошедших курс лечения в неврологической клинике. МЕРОП

Совпадение в аннотации оригинала
BACKGROUND: Persons diagnosed with multiple sclerosis (PwMS) may experience uncertainty regarding the etiology, symptoms, treatment, and cou … esign to explore the relationship between intolerance of uncertainty, symptom severity, and disease self-management in MS patients. A total of 105 MS patients followed in the neurology clinic were included in the study. RESULTS: A positive moderate correlation was found between the participants' mean scores on the Intolerance of Uncertainty Scale and the mean sco …

Use of Treatment and Self-Management Methods: Perspectives and Decisions of Patients With Ulcerative Colitis.

Patients with Ulcerative Colitis (UC) seek a variety of methods to manage the physical and psychosocial burdens of illness on daily life. This study examines how individuals with UC: (1) utilize treatment and self-management methods and (2) make decisions regarding their use of these methods throughout the disease course. Adults living with UC ≥5 years and experienced ≥1 disease flare, participated in individual, semi-structured qualitative interviews. Transcripts were thematically analyzed using a constant comparative approach in NVivo12®. Participants (N = 21) described their decisions to ut…

COVID for One: Identifying Obstacles to Self-Management of COVID-19 for Single Adults.

Given the complexities of healthcare provision, it is imperative to understand how single adults experience their interactions with medical professionals and health care organizations, manage care and treatment, and navigate the barriers encountered. This study's purpose is to understand physical and mental health experiences in consideration of social determinants of health, barriers, and coping strategies for single adults diagnosed with COVID-19. An interpretive phenomenology study design was used with 12 individuals who were single and living alone during the COVID-19 pandemic. Semi-struct

The Barriers and Perceived Benefits to Vulvar Self-Examination in the Management of Vulvar Lichen Sclerosus.

OBJECTIVES: It is common practice to advise people with vulvar lichen sclerosus to perform vulvar self-examination (VSE) to optimize topical therapy and detect changes that may represent active disease, scarring, and/or squamous cell carcinoma development. The aim of this study was to better understand people's willingness and potential barriers to performing VSE. MATERIALS AND METHODS: A cross-sectional survey was undertaken of all patients with vulvar LS presenting to a tertiary referral vulvar dermatology clinic in Australia, from June 2022 to January 2023. Patients who did not speak and r

Promoting Type 1 Diabetes Self-care Management in the Hospital: Can It Be Done?

PURPOSE: The specific aim of the study was to determine whether there was an increased time in target glucose range for individuals with typ … re hyperglycemia leading to diabetic ketoacidosis. The outcomes of this study suggest that diabetes self-management practices in select individuals hospitalized with type 1 diabetes mellitus can contribute to greater glucose stability and time in targeted glucose range.

Development of a pain self-management intervention framework for people with spinal cord injury.

BACKGROUND: Pain is the most common reason for medical visits to primary health care practitioners. Pain self-management interventions are encouraged and there is no known self-management intervention framework available that clinicians and people with spinal cord injury (PWSCI) can use to guide treatment selection. AIM: This study aimed to develop a pain self-management intervention framework for PWSCI. SETTING: Online and facilitated in Gauteng, South Africa. METHODS: A three-round modified e-Delphi method was used to reach an 80% consensus among a 21-expert panel. Fifty-nine intervention…

[Psychometric Properties of the Korean Version of Self-Efficacy for HIV Disease Management Skills].

PURPOSE: This study evaluated the validity and reliability of Shively and colleagues' self-efficacy for HIV disease management skills (HIV-SE) among Korean participants. METHODS: The original HIV-SE questionnaire, comprising 34 items, was translated into Korean using a translation and back-translation process. To enhance clarity and eliminate redundancy, the author and expert committee engaged in multiple discussions and integrated two items with similar meanings into a single item. Further, four HIV nurse experts tested content validity. Survey data were collected from 227 individuals diagno

Association of Texas Senate Bill 8 With Requests for Self-managed Medication Abortion.

This cross-sectional study examines whether the passage of Texas Senate Bill 8 was associated with an increase in requests for self-managed medication abortion.

Trajectories of self-management and independence in youth with spina bifida: Demographic predictors of growth.

AIM: The purpose of this study was to examine the trajectories of condition and independent living self-management in youth with spina bifida (SB). METHODS: A diverse sample of adolescents and young adults (AYAs) with SB completed the Adolescent/Young Adult Self-Management and Independence Scale (AMIS-II) across four time points. Parents reported on demographic characteristics including age, sex, race/ethnicity, and family income. Growth in self-management and its subscales (condition and independent living) were estimated using linear mixed-effect models as a function of respondents' demogra…