Journal of intellectual & developmental disability · 2011
Healthcare and guidelines: a population-based survey of recorded medical problems and health surveillance for people with Down syndrome.
Сравнительное исследованиеОценочное исследованиеСтатьяПоддержка исследования: вне правительства СШАНазвание и аннотация: Перевод в очереди
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Määttä Tuomo, Määttä Joonas, Tervo-Määttä Tuula, Taanila Anja, Kaski Markus, Iivanainen Matti
Аннотация
BACKGROUND: Medical problems are described in a population of persons with Down syndrome. Health surveillance is compared to the recommendations of national guidelines.
METHOD: Case records from the specialised and primary healthcare and disability services were analysed.
RESULTS: A wide spectrum of age-specific medical and surgical problems was described. Congenital heart defects and middle ear infections were mostly experienced by younger people, while thyroid disease, epilepsy, and Alzheimer's disease were frequent among older people. Psychiatric disorders and behavioural problems were frequent in all age groups.
CONCLUSIONS: Health surveillance remained insufficient, despite the guidelines available. A joint effort by healthcare and disability service providers is required to ensure that the medical needs of people with Down syndrome are adequately met across their entire lifespan. An active provision of healthcare and monitoring for this vulnerable group is needed.
METHOD: Case records from the specialised and primary healthcare and disability services were analysed.
RESULTS: A wide spectrum of age-specific medical and surgical problems was described. Congenital heart defects and middle ear infections were mostly experienced by younger people, while thyroid disease, epilepsy, and Alzheimer's disease were frequent among older people. Psychiatric disorders and behavioural problems were frequent in all age groups.
CONCLUSIONS: Health surveillance remained insufficient, despite the guidelines available. A joint effort by healthcare and disability service providers is required to ensure that the medical needs of people with Down syndrome are adequately met across their entire lifespan. An active provision of healthcare and monitoring for this vulnerable group is needed.
Предметные рубрики MeSH
AdolescentAdultAlzheimer DiseaseCeliac DiseaseChildChild, PreschoolComorbidityDelivery of Health CareDown SyndromeEar DiseasesFemaleHealth Services Needs and DemandHearing LossHeart Defects, CongenitalHumansHypothyroidismInfantInfant, NewbornInfectionsMaleMass ScreeningMental DisordersMiddle AgedOral HealthPopulation SurveillancePractice Guidelines as TopicSeizuresSyncopeVision DisordersYoung Adult