Journal of population therapeutics and clinical pharmacology = Journal de la therapeutique des populations et de la pharmacologie clinique · 2014
Frequent behavioural challenges in children with fetal alcohol spectrum disorder: a needs-based assessment reported by caregivers and clinicians.
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Green Courtney R, Roane Jessica, Hewitt Amy, Muhajarine Nazeem, Mushquash Christopher, Sourander Andre, Lingley-Pottie Patricia, McGrath Patrick, Reynolds James N
Аннотация
OBJECTIVE: Despite substantial research characterizing the brain injury, a significant gap still exists in providing timely and effective care for children with Fetal Alcohol Spectrum Disorder (FASD). The objective of this study was to conduct a needs assessment that could help inform intervention programs and appropriate strategies to manage challenging behaviours targeted to families impacted by FASD.
METHODS: Sixty caregivers and 26 clinicians from across Canada completed a semi-structured telephone interview.
RESULTS: Caregivers reported that the most challenging behaviour categories were "Externalizing Behaviours", "Cognitive Difficulties", and "Social Difficulties/Maladjustment", whereas the most successful parenting strategies were "Parental Reflection", "Routine/Structure/Consistency", and "Environmental Modification". Clinicians reported that "Insufficient Support/Knowledge from Health and Social Professionals and Agencies" and "Behavioural Difficulties/Challenges" were the most common concerns from caregivers of children with FASD.
CONCLUSIONS: The number and extent of challenges reported make it evident that there are many unmet needs that compromise the quality of life for these caregivers, their children, and their families. These data will be used to inform the development of an intervention program that will provide a family-centered approach to training, education, and support for children with FASD and their families.
METHODS: Sixty caregivers and 26 clinicians from across Canada completed a semi-structured telephone interview.
RESULTS: Caregivers reported that the most challenging behaviour categories were "Externalizing Behaviours", "Cognitive Difficulties", and "Social Difficulties/Maladjustment", whereas the most successful parenting strategies were "Parental Reflection", "Routine/Structure/Consistency", and "Environmental Modification". Clinicians reported that "Insufficient Support/Knowledge from Health and Social Professionals and Agencies" and "Behavioural Difficulties/Challenges" were the most common concerns from caregivers of children with FASD.
CONCLUSIONS: The number and extent of challenges reported make it evident that there are many unmet needs that compromise the quality of life for these caregivers, their children, and their families. These data will be used to inform the development of an intervention program that will provide a family-centered approach to training, education, and support for children with FASD and their families.
Предметные рубрики MeSH
Adaptation, PsychologicalAdultCanadaCaregiversChecklistChildChild BehaviorChild DevelopmentChild, PreschoolFamily RelationsFemaleFetal Alcohol Spectrum DisordersHealth Knowledge, Attitudes, PracticeHealth Services Needs and DemandHumansInterviews as TopicMaleMiddle AgedNeeds AssessmentPatient Education as TopicPhysiciansQualitative ResearchQuality of LifeSurveys and QuestionnairesTelephoneYoung Adult