The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2013
When there is more than a cleft: psychological adjustment when a cleft is associated with an additional condition.
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Feragen Kristin Billaud, Stock Nicola Marie
Аннотация
BACKGROUND: In spite of studies reporting a relatively high frequency of additional conditions in children with a cleft lip and/or cleft palate (CL/P), almost no research has focused on this clinically important subgroup. The objective of this study was to compare psychosocial adjustment in children with CL/P with and without an additional condition.
DESIGN: Cross-sectional data based on routine psychological assessments at age 10 years, with comparisons to national reference groups.
SETTING: Centralized treatment, Norway.
PARTICIPANTS: Two hundred five children with CL/P (participation rate: 80.1%) from three consecutive birth cohorts.
OUTCOME MEASURES: The Strengths and Difficulties Questionnaire (self-report and parent report) and the Child Experience Questionnaire (self-report).
RESULTS: Eighty-one children (39.5%) were identified as having at least one condition in addition to the cleft. These children reported significantly more psychosocial difficulties than children with a cleft alone. Differences between specific conditions were minor. Children with a cleft alone (n = 124) reported mean scores that were comparable to those reported by the reference group. There were no differences in adjustment between children with a visible versus a non-visible cleft.
CONCLUSIONS: The present study highlights the need for research to be conducted in children with CL/P who have additional conditions to provide better knowledge and clinical care for a potentially vulnerable subgroup of children and their parents.
DESIGN: Cross-sectional data based on routine psychological assessments at age 10 years, with comparisons to national reference groups.
SETTING: Centralized treatment, Norway.
PARTICIPANTS: Two hundred five children with CL/P (participation rate: 80.1%) from three consecutive birth cohorts.
OUTCOME MEASURES: The Strengths and Difficulties Questionnaire (self-report and parent report) and the Child Experience Questionnaire (self-report).
RESULTS: Eighty-one children (39.5%) were identified as having at least one condition in addition to the cleft. These children reported significantly more psychosocial difficulties than children with a cleft alone. Differences between specific conditions were minor. Children with a cleft alone (n = 124) reported mean scores that were comparable to those reported by the reference group. There were no differences in adjustment between children with a visible versus a non-visible cleft.
CONCLUSIONS: The present study highlights the need for research to be conducted in children with CL/P who have additional conditions to provide better knowledge and clinical care for a potentially vulnerable subgroup of children and their parents.