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DOI 10.1002/mus.25164

Медицинская библиотека · Muscle & nerve · 2016

Rasch analysis of the Pediatric Evaluation of Disability Inventory-computer adaptive test (PEDI-CAT) item bank for children and young adults with spinal muscular atrophy.

Pasternak Amy, Sideridis Georgios, Fragala-Pinkham Maria, Glanzman Allan M, Montes Jacqueline, Dunaway Sally, Salazar Rachel, Quigley Janet, Pandya Shree, O'Riley Susan, Greenwood Jonathan, Chiriboga Claudia, Finkel Richard, Tennekoon Gihan, Martens William B, McDermott Michael P, Fournier Heather Szelag, Madabusi Lavanya, Harrington Timothy, Cruz Rosangel E, LaMarca Nicole M, Videon Nancy M, Vivo Darryl C De, Darras Basil T, Muscle Study Group (MSG) and the Pediatric Neuromuscular Clinical Research Network for Spinal Muscular Atrophy (PNCRN)

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Аннотация

INTRODUCTION

In this study we evaluated the suitability of a caregiver-reported functional measure, the Pediatric Evaluation of Disability Inventory-Computer Adaptive Test (PEDI-CAT), for children and young adults with spinal muscular atrophy (SMA).

METHODS

PEDI-CAT Mobility and Daily Activities domain item banks were administered to 58 caregivers of children and young adults with SMA. Rasch analysis was used to evaluate test properties across SMA types.

RESULTS

Unidimensional content for each domain was confirmed. The PEDI-CAT was most informative for type III SMA, with ability levels distributed close to 0.0 logits in both domains. It was less informative for types I and II SMA, especially for mobility skills. Item and person abilities were not distributed evenly across all types.

CONCLUSIONS

The PEDI-CAT may be used to measure functional performance in SMA, but additional items are needed to identify small changes in function and best represent the abilities of all types of SMA. Muscle Nerve 54: 1097-1107, 2016.

Для цитирования: Pasternak Amy, Sideridis Georgios, Fragala-Pinkham Maria, Glanzman Allan M, Montes Jacqueline, Dunaway Sally, Salazar Rachel, Quigley Janet, Pandya Shree, O'Riley Susan, Greenwood Jonathan, Chiriboga Claudia, Finkel Richard, Tennekoon Gihan, Martens William B, McDermott Michael P, Fournier Heather Szelag, Madabusi Lavanya, Harrington Timothy, Cruz Rosangel E, LaMarca Nicole M, Videon Nancy M, Vivo Darryl C De, Darras Basil T, Muscle Study Group (MSG) and the Pediatric Neuromuscular Clinical Research Network for Spinal Muscular Atrophy (PNCRN). Rasch analysis of the Pediatric Evaluation of Disability Inventory-computer adaptive test (PEDI-CAT) item bank for children and young adults with spinal muscular atrophy.. Muscle & nerve. 2016. DOI: 10.1002/mus.25164.

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