Academic pediatrics · 2026
Sources of Emotional Support Among Family Caregivers of Children With More Complex Special Health Care Needs.
СтатьяПоддержка NIH: внешняя программаНазвание и аннотация: Перевод в очереди
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Huynh Kevin H, Houtrow Amy, Yu Justin
Аннотация
OBJECTIVE: Identify sources of emotional support among caregivers of children with more complex special health care needs (SHCN) and examine their relationships with caregiver emotional well-being.
METHODS: Secondary analysis of the 2016 to 2022 National Survey of Children's Health. We categorized children by degree of medical complexity: no SHCN, less complex SHCN, and more complex SHCN. Our primary outcome was caregivers' self-reported sources of emotional support. Chi-squared testing compared caregivers' sources of emotional support across child medical complexity levels. Adjusted logistic regression analyses then examined the associations between emotional support sources and our secondary outcomes (caregiver-reported mental health, parental coping, and parental aggravation) among caregivers of children with more complex SHCN.
RESULTS: Compared to caregivers of children with no and less complex SHCN, caregivers of more complex SHCN (weighted n = 10.1 million) were significantly less likely (P<.01) to report receiving emotional support from a spouse/domestic partner (74.9% vs 78.9%-84.5%) and more likely from a health care provider (43.3% vs 27.8%-33.1%), mental health professional (30.1% vs 7.7%-10.3%), advocacy group (13.3% vs 3.0%-4.1%), and peer support group (15.4% vs 12.4%-12.7%). Among caregivers of more complex SHCN, emotional support from a family member/close friend, place of worship/religious leader, and peer support group was associated with significantly lower odds of adverse emotional well-being.
CONCLUSIONS: Caregivers of children with more complex SHCN report relying on a wide network of emotional support sources. Enhanced care coordination models should include screening for and connecting families to alternative sources of emotional support as central service.
METHODS: Secondary analysis of the 2016 to 2022 National Survey of Children's Health. We categorized children by degree of medical complexity: no SHCN, less complex SHCN, and more complex SHCN. Our primary outcome was caregivers' self-reported sources of emotional support. Chi-squared testing compared caregivers' sources of emotional support across child medical complexity levels. Adjusted logistic regression analyses then examined the associations between emotional support sources and our secondary outcomes (caregiver-reported mental health, parental coping, and parental aggravation) among caregivers of children with more complex SHCN.
RESULTS: Compared to caregivers of children with no and less complex SHCN, caregivers of more complex SHCN (weighted n = 10.1 million) were significantly less likely (P<.01) to report receiving emotional support from a spouse/domestic partner (74.9% vs 78.9%-84.5%) and more likely from a health care provider (43.3% vs 27.8%-33.1%), mental health professional (30.1% vs 7.7%-10.3%), advocacy group (13.3% vs 3.0%-4.1%), and peer support group (15.4% vs 12.4%-12.7%). Among caregivers of more complex SHCN, emotional support from a family member/close friend, place of worship/religious leader, and peer support group was associated with significantly lower odds of adverse emotional well-being.
CONCLUSIONS: Caregivers of children with more complex SHCN report relying on a wide network of emotional support sources. Enhanced care coordination models should include screening for and connecting families to alternative sources of emotional support as central service.