BMC geriatrics · 2025
"I tell you what it's the hardest job": the experiences of family carers providing support for people with dementia at home in the last year of life.
СтатьяНазвание и аннотация: Перевод в очереди
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Mogan Caroline, Dening Karen Harrison, Dowrick Christopher, McCarrick Kelly, Lloyd-Williams Mari
Аннотация
BACKGROUND: More people are dying at home with dementia. While there is growing recognition of the central role that family carers play when supporting people with dementia to die at home, knowledge gaps remain around how to best support them as they care for the person during the last year of life.
AIM: To explore the experiences of bereaved family carers who had provided care for a person with dementia living at home in the last year of life.
DESIGN: A descriptive qualitative study based on a constructivist epistemology using in-depth semi-structured interviews. Data were analysed using reflexive thematic analysis.
PARTICIPANTS: Twenty-nine bereaved family carers who had supported a person with dementia living at home in the last year of life.
RESULTS: Caring for a person with dementia at home in the last year of life can be emotionally, mentally, and physically overwhelming. Family carers described the challenges they faced when trying to ensure that they met the needs of the person with dementia so that they could remain at home. Three overarching themes were developed from the data: Managing end-of-life symptoms and associated conditions; Living with uncertainty; and Impacts on wellbeing.
CONCLUSIONS: Supporting a person with dementia at home in the last year of life can jeopardise family carers' own health, finances, relationships, and overall wellbeing. Many felt that they had limited understanding about the prognosis of dementia and how this would impact on caring at home, leaving them feeling unsupported amidst the incredible responsibilities placed on them. Family carers would benefit from training on how to provide practical aspects care for the person with dementia in the home, as well as support when making decisions for the person with dementia towards the end-of-life.
AIM: To explore the experiences of bereaved family carers who had provided care for a person with dementia living at home in the last year of life.
DESIGN: A descriptive qualitative study based on a constructivist epistemology using in-depth semi-structured interviews. Data were analysed using reflexive thematic analysis.
PARTICIPANTS: Twenty-nine bereaved family carers who had supported a person with dementia living at home in the last year of life.
RESULTS: Caring for a person with dementia at home in the last year of life can be emotionally, mentally, and physically overwhelming. Family carers described the challenges they faced when trying to ensure that they met the needs of the person with dementia so that they could remain at home. Three overarching themes were developed from the data: Managing end-of-life symptoms and associated conditions; Living with uncertainty; and Impacts on wellbeing.
CONCLUSIONS: Supporting a person with dementia at home in the last year of life can jeopardise family carers' own health, finances, relationships, and overall wellbeing. Many felt that they had limited understanding about the prognosis of dementia and how this would impact on caring at home, leaving them feeling unsupported amidst the incredible responsibilities placed on them. Family carers would benefit from training on how to provide practical aspects care for the person with dementia in the home, as well as support when making decisions for the person with dementia towards the end-of-life.