Qualitative health research · 2020
Experiences of Tourette Syndrome Caregivers With Supportive Communication.
СтатьяНазвание и аннотация: Перевод пока не подготовлен
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Travis Eryn, Juarez-Paz Anna Victoria Ortiz
Аннотация
The experiences of Tourette syndrome (TS) caregivers with supportive communication are examined in this qualitative investigation. TS is a childhood-onset neurodevelopmental disorder marked by a combination of involuntary verbal and motor tics lasting for more than 1 year. Although individuals are impacted the most by TS, the stress for caring for a child with TS takes an emotional and physical toll on the caregiver. Eleven participants shared their experiences with receiving supportive communication by taking part in semi-structured interviews. Data analysis yielded three themes: (a) TS caregivers describe their experiences as a struggle; (b) they seek out specific social support from friends and families; and (c) they frequently receive social support that increases instead of reducing stress.