Developmental medicine and child neurology · 2025
Parental caregiver expectations of hip and spine surgery in children with neuromuscular conditions: A qualitative study.
СтатьяНазвание и аннотация: Перевод пока не подготовлен
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Geyer David, Venkatesh Meghana, Vessey Judith A, Mariani Juliana, Shore Benjamin J, Difazio Rachel L
Аннотация
AIM: To explore the expectations of parental caregivers whose children with central nervous system disorders undergo hip or spine surgery. Specifically, to understand: (1) the expectations caregivers hold regarding their child's perioperative trajectory; and (2) the experiences that shape these expectations.
METHOD: This was a qualitative descriptive study that used semi-structured interviews with parental caregivers both preoperatively and 3 months postoperatively. Purposive sampling was used to recruit participants between November 2023 and July 2024. The study applied the integrative model of patients' expectations as its conceptual framework. Transcripts were analyzed using conventional content analysis.
RESULTS: Thirteen preoperative and 12 postoperative interviews were conducted. Parental expectations centered on surgical outcomes and the perioperative trajectory. Caregivers universally anticipated improved comfort and health-related quality of life but were uncertain about the perioperative course. Factors influencing expectation development included congruence between caregiver and provider priorities, trust in the medical team, logistical challenges, and access to external support.
INTERPRETATION: The findings of this study highlight the value of ensuring that the expectations of healthcare providers reflect those of parents to strengthen preparedness. Addressing gaps in perioperative information could mitigate anxiety and improve outcomes. Future efforts should focus on caregiver education and peer support to bridge existing knowledge gaps and optimize perioperative expectations.
METHOD: This was a qualitative descriptive study that used semi-structured interviews with parental caregivers both preoperatively and 3 months postoperatively. Purposive sampling was used to recruit participants between November 2023 and July 2024. The study applied the integrative model of patients' expectations as its conceptual framework. Transcripts were analyzed using conventional content analysis.
RESULTS: Thirteen preoperative and 12 postoperative interviews were conducted. Parental expectations centered on surgical outcomes and the perioperative trajectory. Caregivers universally anticipated improved comfort and health-related quality of life but were uncertain about the perioperative course. Factors influencing expectation development included congruence between caregiver and provider priorities, trust in the medical team, logistical challenges, and access to external support.
INTERPRETATION: The findings of this study highlight the value of ensuring that the expectations of healthcare providers reflect those of parents to strengthen preparedness. Addressing gaps in perioperative information could mitigate anxiety and improve outcomes. Future efforts should focus on caregiver education and peer support to bridge existing knowledge gaps and optimize perioperative expectations.