'Navigating the ride': stakeholder perspectives on public transportation challenges for children with autism in India.

OBJECTIVE

To explore the perspectives of primary caregivers, healthcare professionals and transport personnel regarding the challenges associated with public transportation for children with autism spectrum disorder in India.

DESIGN

This study applied a descriptive phenomenological qualitative design.

SETTING

The study was conducted at a tertiary care teaching centre in South India.

PARTICIPANTS

21 participants comprising nine primary caregivers of children with autism spectrum disorder, six healthcare professionals and six transport personnel were recruited using purposive maximum variability sampling.

METHODS

In-depth interviews were conducted with the participants and audio-recorded for transcription. The transcripts were manually coded and analysed using Systematic Text Condensation.

RESULTS

The results demonstrate that public transport is a complex social ecosystem comprising the child, caregivers, co-passengers and transport personnel. Healthcare professionals and policymakers, while not directly involved in travel, also influence the experience. Three major themes were identified: challenges associated with public transport, facilitators for better travel experiences and stakeholder recommendations for improving travel experiences.

CONCLUSIONS

This study identified key barriers to accessing public transport for children with autism spectrum disorder and their families. Facilitators and potential strategies to address travel-related challenges are also discussed. These findings provide insights into stakeholder perspectives that may inform efforts to improve accessibility and travel experiences on public transport for children.